%0期刊文章@ 1438-8871 %I Gunther Eysenbach %V 3% N 4% P e33% T A基于java的β -地中海贫血电子医疗记录软件%A Deftereos,S %A Lambrinoudakis,C %A Andriopoulos,P %A Farmakis,D %A Aessopos,A %+ Nikis 31 st, 13122, Ilion，雅典，希腊，+30977072366,deftereo@otenet.gr %K医疗记录系统，计算机化%K计算机化医疗记录%K β -地中海贫血病%K医疗保健交付%K自动数据处理%D 2001年%7 26.12.2001 %9原始论文%J J医学Internet Res %G英文%X背景:β -地中海贫血病是一种遗传性疾病，在地中海、非洲和东南亚血统的人群中患病率较高。在希腊，这是一个重要的公共卫生问题。乙型地中海贫血需要持续和复杂的保健程序，如每日螯合;两周一次的输血;以及定期的心脏病学，内分泌学和肝病学评估。通常情况下，不同的护理项目在不同的，往往是遥远的医疗单位提供，这导致增加了病人的流动性。这在农村地区尤其如此。乙型地中海贫血患者的医疗记录不可避免地很复杂，而且数量增长很快。它们目前是纸质的，分散在护理过程中涉及的所有单位。 This hinders communication of information between health care professionals and makes processing of the medical records difficult, thus impeding medical research. Objective: Our objective is to provide an electronic means for recording, communicating, and processing all data produced in the context of the care process of patients suffering from beta-thalassaemia. Methods: We have developed - and we present in this paper - Java-based Electronic Healthcare Record (EHCR) software, called JAnaemia. JAnaemia is a general-purpose EHCR application, which can be customized for use in all medical specialties. Customization for beta-thalassaemia has been performed in collaboration with 4 Greek hospitals. To be capable of coping with patient record diversity, JAnaemia has been based on the EHCR architecture proposed in the ENV 13606:1999 standard, published by the CEN/TC251 committee. Compliance with the CEN architecture also ensures that several additional requirements are fulfilled in relation to clinical comprehensiveness; to record sharing and communication; and to ethical, medico-legal, and computational issues. Special care has been taken to provide a user-friendly, form-based interface for data entry and processing. Results: The experience gained through the use of JAnaemia in 4 Greek hospitals reveals a significant contribution towards (1) improvement of the quality of the data being recorded, since data entry is guided by appropriate forms, (2) easier cooperation between physicians, who share a common information repository, and (3) increased processing capabilities, which facilitate medical research. Conclusions: JAnaemia appears to be a useful tool, which can improve the quality of care offered to beta-thalassaemic patients in Greece. %M 11772548 %R 10.2196/jmir.3.4.e33 %U //www.mybigtv.com/2001/4/e33/ %U https://doi.org/10.2196/jmir.3.4.e33 %U http://www.ncbi.nlm.nih.gov/pubmed/11772548