在挪威，患者在线访问电子健康记录的使用和体验:卡塔尔世界杯8强波胆分析在线调查结果%A Zanaboni,Paolo %A Kummervold,Per Egil %A Sørensen,Tove %A Johansen,Monika Alise %+挪威电子健康研究中心，北挪威大学医院，特罗姆瑟，邮政信箱35号，挪威，47 91554636,paolo.zanaboni@ehealthresearch.no %K电子健康记录%K患者在线访问%K患者门户网站%K服务利用率%K满意度%K患者授权%D 2020 %7 7.2.2020 %9原文%J J Med Internet Res %G English %X电子健康记录(EHR)已在挪威所有医院全面建立。16岁及以上的公民可通过国家卫生门户网站Helsenorge获得患者无障碍电子健康记录(PAEHRs)。目的:本研究旨在了解患者如何使用PAEHRs。为了探索(1)用户的特征，(2)患者对服务的使用，以及(3)患者对服务的体验，我们解决了三个研究问题。方法:我们对通过国家卫生门户网站至少访问过一次电子病历的用户进行了在线调查。挪威四个卫生区域中的两个区域的患者被邀请参加。定量资料辅以定性资料。结果:共有1037名受访者参与了调查，其中大部分人定期使用PAEHR(305/1037, 29.4%)或在必要时使用PAEHR(303/1037, 29.2%)。 Service utilization was associated with self-reported health, age, gender, education, and health care professional background. Patients found the service useful to look up health information (687/778, 88.3%), keep track of their treatment (684/778, 87.9%), prepare for a hospital appointment (498/778, 64.0%), and share documents with their general practitioner (292/778, 37.5%) or family (194/778, 24.9%). Most users found it easy to access their EHR online (965/1037, 93.1%) and did not encounter technical challenges. The vast majority of respondents (643/755, 85.2%) understood the content, despite over half of them acknowledging some difficulties with medical terms or phrases. The overall satisfaction with the service was very high (700/755, 92.7%). Clinical advantages to the patients included enhanced knowledge of their health condition (565/691, 81.8%), easier control over their health status (685/740, 92.6%), better self-care (571/653, 87.4%), greater empowerment (493/674, 73.1%), easier communication with health care providers (493/618, 79.8%), and increased security (655/730, 89.7%). Patients with complex, long-term or chronic conditions seemed to benefit the most. PAEHRs were described as useful, informative, effective, helpful, easy, practical, and safe. Conclusions: PAEHRs in Norway are becoming a mature service and are perceived as useful by patients. Future studies should include experimental designs focused on specific populations or chronic conditions that are more likely to achieve clinically meaningful benefits. Continuous evaluation programs should be conducted to assess implementation and changes of wide-scale routine services over time. %M 32031538 %R 10.2196/16144 %U //www.mybigtv.com/2020/2/e16144 %U https://doi.org/10.2196/16144 %U http://www.ncbi.nlm.nih.gov/pubmed/32031538