%0期刊文章@ 1438- 8871% I JMIR出版物%V 21%卡塔尔世界杯8强波胆分析 N 8% P 7081 %T了解公众对使用社交媒体检测和监测不良事件数据的研究人员的态度:多种方法研究%A Golder,Su %A Scantlebury,Arabella %A Christmas,Helen %+约克大学健康科学系，赫斯灵顿，约克，YO10 5DD，英国，44 1904321904,su.golder@york.ac.uk %K不良反应%K社交媒体%K研究%K质量研究%K数字健康%K信息流行病学%K信息监测%K药物预警%K监测%D 2019 %7 29.08.2019 %9原始论文%J J医学互联网Res %G英文%X背景:不良事件在研究研究中被低估，特别是随机对照试验和药物警戒研究。研究人员可以使用的一种方法是使用社交媒体分析来确定更完整的药物安全性。然而，患者对在社交媒体上使用患者不良药物事件报告相关的伦理问题的看法尚不清楚。目的:本研究的目的是探讨使用社交媒体检测和监测不良事件的伦理学，使用多种方法进行研究。方法:采用多方法设计，包括定性半结构化访谈(n=24)、焦点小组(n=3)和3次与公众成员的网络讨论(n=20)。最近一项关于使用社交媒体监测不良事件的系统综述提供了一个理论框架来解释这项研究的发现。结果:研究人员就研究的潜在收益和危害、隐私预期、知情同意和社交媒体平台确定了意见。尽管大多数参与者支持将社交媒体内容用于不良事件的研究，但少数参与者强烈反对这一想法。 The potential benefit of the research was cited as the most influential factor to whether participants would give their consent to their data being used for research. There were also some caveats to people’s support for the use of their social media data for research purposes: the type of social media platform and consideration of the vulnerability of the social media user. Informed consent was regarded as difficult to obtain and this divided the opinion on whether it should be sought. Conclusions: Social media users were generally positive about their social media data being used for research purposes; particularly for research on adverse events. However, approval was dependent on the potential benefit of the research and that individuals are protected from harm. Further study is required to establish when consent is required for an individual’s social media data to be used. %M 31469079 %R 10.2196/jmir.7081 %U //www.mybigtv.com/2019/8/e7081/ %U https://doi.org/10.2196/jmir.7081 %U http://www.ncbi.nlm.nih.gov/pubmed/31469079

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