维基百科自身免疫性疾病页面的可读性:卡塔尔世界杯8强波胆分析系统定量评估%A Watad,Abdulla %A Bragazzi,Nicola Luigi %A Brigo,Francesco %A Sharif,Kassem %A Amital,Howard %A McGonagle,Dennis %A Shoenfeld,Yehuda %A Adawi,Mohammad %+医学系B, Sheba医疗中心，Tel- hashomer, 52621，以色列特拉维夫，972 3 530 2435,watad.abdulla@gmail.com %K自身免疫性疾病%K eHealth %K远程医疗%K可读性%K Wikipedia %D 2017 %7 18.07.2017 %9原始论文%J J Med Internet Res %G English %X背景:在新的信息和通信技术时代，越来越多的人利用互联网获取与健康有关的信息。事实上，最近发表的对自身免疫性疾病患者的调查证实，互联网被报道为最重要的健康信息来源之一。维基百科是2001年推出的免费在线百科全书，通常是世界上访问量最大的网站之一，人们经常咨询与健康有关的信息。目的:本研究的主要目的是定量评估与自身免疫性疾病相关的维基百科页面是否容易被患者及其家属访问，在可读性方面。方法:我们从美国自身免疫相关疾病协会(AARDA)网站上获取并下载了一份自身免疫性疾病清单。我们用6种不同的定量可读性量表来分析维基百科文章的总体可读性水平:(1)Flesch Reading Ease， (2) Gunning Fog Index， (3) Coleman-Liau Index， (4) Flesch- kincaid Grade level， (5) Automated readable Index (ARI)，以及(6)Simple Measure of Gobbledygook (SMOG)。此外，我们调查了可读性与临床、病理和流行病学参数之间的相关性。此外，每个维基百科分析都是根据其内容进行评估的，按照每个部分的主题(即发病机制、治疗、诊断和预后加上一个包含不属于上述任何类别的段落的部分)分解可读性指标。 Results: We retrieved 134 diseases from the AARDA website. The Flesch Reading Ease yielded a mean score of 24.34 (SD 10.73), indicating that the sites were very difficult to read and best understood by university graduates, while mean Gunning Fog Index and ARI scores were 16.87 (SD 2.03) and 14.06 (SD 2.12), respectively. The Coleman-Liau Index and the Flesch-Kincaid Grade Level yielded mean scores of 14.48 (SD 1.57) and 14.86 (1.95), respectively, while the mean SMOG score was 15.38 (SD 1.37). All the readability indices confirmed that the sites were suitable for a university graduate reading level. We found no correlation between readability and clinical, pathological, and epidemiological parameters. Differences among the different sections of the Wikipedia pages were statistically significant. Conclusions: Wikipedia pages related to autoimmune disorders are characterized by a low level of readability. The onus is, therefore, on physicians and health authorities to improve the health literacy skills of patients and their families and to create, together with patients themselves, disease-specific readable sites, disseminating highly accessible health-related online information, in terms of both clarity and conciseness. %M 28720555 %R 10.2196/jmir.8225 %U //www.mybigtv.com/2017/7/e260/ %U https://doi.org/10.2196/jmir.8225 %U http://www.ncbi.nlm.nih.gov/pubmed/28720555