@Article{信息:doi 10.2196 / / jmir.9.2。e13，作者=“Atkinson, Nancy L和Massett, Holly A和Mylks, Christy和Hanna, Bethany和Deering, Mary Jo和Hesse, Bradford W”，标题=“以用户为中心的基于互联网的临床试验匹配系统中乳腺癌患者需求和偏好的研究”，期刊=“J Med Internet Res”，年=“2007”，月=“May”，日=“15”，卷=“9”，数=“2”，页=“e13”，关键词=“软件设计;用户计算机接口;乳腺肿瘤;个人健康记录;定性研究;以用户为中心的设计;背景:基于互联网的临床试验匹配系统有可能简化乳腺癌妇女寻求替代治疗的搜索过程。开发了一个原型系统，以利用个人健康记录系统的功能来确定临床试验。目的:本研究探讨了乳腺癌患者在考虑诊断和治疗决策需求的情况下，如何感知和互动基于互联网的临床试验匹配系统的初步版本。 Methods: Breast cancer patients participated in small group discussions and interacted with the prototype website in a two-phase qualitative research process. The first phase explored the experience of breast cancer patients (n = 8) with treatment decision making, initial responses to the idea of Internet-based clinical trial matching systems, and reactions to the prototype site. In the second phase, a different set of breast cancer patients (n = 7) reviewed revised website content and presentation and participated in a usability test in which they registered on the system and completed a personal health record to set up the matching process. Results: Participants were initially skeptical of the prototype system because it emphasized registration, had a complicated registration process, and asked for complex medical information. Changing content and attending to usability guidelines improved the experience for women in the second phase of the research and enabled the identification of functionality and content issues, such as lack of clear information and directions on how to use the system. Conclusions: This study showed that women felt favorably about the idea of using the Internet to search for clinical trials but that such a system needed to meet their expectations for credibility and privacy and be sensitive to their situation. Developers can meet these expectations by conforming to established usability guidelines and testing improvements with breast cancer patients. Future research is needed to verify these findings and to continue to improve systems of this nature. ", issn="1438-8871", doi="10.2196/jmir.9.2.e13", url="//www.mybigtv.com/2007/2/e13/", url="https://doi.org/10.2196/jmir.9.2.e13", url="http://www.ncbi.nlm.nih.gov/pubmed/17513284" }