@文章{信息:doi/10.2196/40181，作者=“米尔恩-艾夫斯，麦迪逊和卡罗尔，卡米尔和梅纳特，爱德华”，标题=“帕金森病患者的自我管理干预:范围回顾”，期刊=“J医学互联网研究”，年=“2022”，月=“8”，日=“5”，卷=“24”，数=“8”，页=“e40181”，关键词=“帕金森病;自我管理;自理;家庭护理;自我效能感;生活质量;体征和症状;背景:帕金森病会给患者、他们的家人和护理人员以及卫生保健系统带来巨大的痛苦和成本。为了减轻家庭和卫生保健系统的这些负担，需要更好地支持患者自我管理。为了实现这一点，需要对自我管理文献的当前状态进行概述，以确定正在做什么，它的工作效果如何，以及可能遗漏了什么。 Objective: The aim of this scoping review was to provide an overview of the current body of research on self-management interventions for people with Parkinson disease and identify any knowledge gaps. Methods: The PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews) and Population, Intervention, Comparator, Outcome, and Study type frameworks were used to structure the methodology of the review. Due to time and resource constraints, 1 reviewer systematically searched 4 databases (PubMed, Ovid, Scopus, and Web of Science) for the evaluations of self-management interventions for Parkinson disease published in English. The references were screened using the EndNote X9 citation management software, titles and abstracts were manually reviewed, and studies were selected for inclusion based on the eligibility criteria. Data were extracted into a pre-established form and synthesized in a descriptive analysis. Results: There was variation among the studies on study design, sample size, intervention type, and outcomes measured. The randomized controlled trials had the strongest evidence of effectiveness: 5 out of 8 randomized controlled trials found a significant difference between groups favoring the intervention on their primary outcome, and the remaining 3 had significant effects on at least some of the secondary outcomes. The 2 interventions included in the review that targeted mental health outcomes both found significant changes over time, and the 3 algorithms evaluated performed well. The remaining studies examined patient perceptions, acceptability, and cost-effectiveness and found generally positive results. Conclusions: This scoping review identified a wide variety of interventions designed to support various aspects of self-management for people with Parkinson disease. The studies all generally reported positive results, and although the strength of the evidence varied, it suggests that self-management interventions are promising for improving the care and outcomes of people with Parkinson disease. However, the research tended to focus on the motor aspects of Parkinson disease, with few nonmotor or holistic interventions, and there was a lack of evaluation of cost-effectiveness. This research will be important to providing self-management interventions that meet the varied and diverse needs of people with Parkinson disease and determining which interventions are worth promoting for widespread adoption. ", issn="1438-8871", doi="10.2196/40181", url="//www.mybigtv.com/2022/8/e40181", url="https://doi.org/10.2196/40181", url="http://www.ncbi.nlm.nih.gov/pubmed/35930315" }