@Article{信息:doi 10.2196 / / jmir。1223，作者=“Hill-Kayser, Christine E和Vachani, Carolyn和Hampshire, Margaret K和Jacobs, Linda A和Metz, James M”，标题=“为幸存者和医疗保健提供者创建癌症幸存者护理计划的互联网工具:设计，实施，使用和用户满意度”，期刊=“J Med Internet Res”，年=“2009”，月=“Sep”，日=“4”，卷=“11”，数=“3”，页=“e39”，关键词=“幸存者;癌症幸存者;病人护理计划;幸存者护理计划;癌症治疗的晚期效应;幸存者问题;背景:癌症幸存者护理计划已经被医学研究所推荐给所有癌症幸存者。我们实施了一个基于互联网的工具，用于创建个性化的生存护理计划。据我们所知，这是该类型的第一个被设计并公开访问的工具。 Objective: To investigate patterns of use and satisfaction with an Internet-based tool for creation of survivorship care plans. Methods: OncoLife, an Internet-based program for creation of survivorship care plans, was designed by a team of dedicated oncology nurses and physicians at the University of Pennsylvania. The program was designed to provide individualized, comprehensive health care recommendations to users responding to queries regarding demographics, diagnosis, and cancer treatments. After being piloted to test populations, OncoLife was made publicly accessible via Oncolink, a cancer information website based at the University of Pennsylvania which averages 3.9 million page views and over 385,000 unique visits per month. Data entered by anonymous public users was maintained and analyzed. Results: From May 2007 to November 2008, 3343 individuals utilized this tool. Most (63{\%}) identified themselves as survivors, but also health care providers (25{\%}) and friends/family of survivors (12{\%}). Median age at diagnosis was 48 years (18 - 100+), and median current age 51 (19 - 100+). Most users were Caucasian (87{\%}), female (71{\%}), and college-educated (82{\%}). Breast cancer was the most common diagnosis (46{\%}), followed by hematologic (12{\%}), gastrointestinal (11{\%}), gynecologic (9{\%}), and genitourinary (8{\%}). Of all users, 84{\%} had undergone surgery, 80{\%} chemotherapy, and 60{\%} radiotherapy. Half of users (53{\%}) reported receiving follow-up care from only an oncologist, 13{\%} only a primary care provider (PCP), and 32{\%} both; 12{\%} reported having received survivorship information previously. Over 90{\%} of users, both survivors and health care providers, reported satisfaction levels of ``good'' to ``excellent'' using this tool. Conclusions: Based on our experience with implementation of what is, to our knowledge, the first Web-based program for creation of survivorship care plans, survivors and health care providers appear both willing to use this type of tool and satisfied with the information provided. Most users have never before received survivorship information. Future iterations will focus on expanding accessibility and improving understanding of the needs of cancer survivors in the era of the Internet. ", issn="1438-8871", doi="10.2196/jmir.1223", url="//www.mybigtv.com/2009/3/e39/", url="https://doi.org/10.2196/jmir.1223", url="http://www.ncbi.nlm.nih.gov/pubmed/19734128" }