研究特殊医疗需求儿童的家庭照顾者的经验，为数字医疗系统的设计提供信息;卡塔尔世界杯8强波胆分析形成性定性研究%A Tennant,Ryan %A Allana,Sana %A Mercer,Kate %A Burns,Catherine M %+加拿大N2L 3G1滑铁卢大学工程学院系统设计工程系，1 5198884567 ryan.tennant@uwaterloo.ca %K儿童%K照顾者%K数字健康%K家庭护理%K定性研究%K技术%D 2022 %7 5.1.2022 %9原文%J JMIR Form Res %G English %X有特殊保健需要的儿童的家庭照顾者负责管理和交流有关其子女在家中的健康的信息。虽然家庭护理人员目前通过非数字方法获取信息，但数字医疗保健应用程序是一种很有前途的解决方案，可支持整个儿童医疗保健团队中复杂家庭护理的信息管理标准化。然而，在数字卫生保健工具采用率较低的地方，家庭护理人员继续使用基于纸张的方法。随着对有复杂医疗保健需求的儿童的家庭护理的增加，了解护理工作领域，为支持家庭儿童安全的技术设计提供信息是很重要的。目的:本研究的目的是探讨家庭照顾者如何在复杂的家庭护理中进行信息管理和沟通。方法:本研究是一项更广泛的研究的一部分，旨在探索护理者在复杂家庭护理中整合和设计数字医疗保健工具的观点。更广泛的研究包括关于设计语音用户界面以支持家庭护理的访谈和调查。本研究以半结构式访谈资料为基础，探讨家庭照护者的居家照护情况。 Inductive thematic analysis was used to analyze the information management and communication processes. Results: We collected data from 7 family caregivers in North America and identified 5 themes. First, family caregivers were continuously learning to provide care. They were also updating the caregiver team on their child’s status and teaching caregivers about their care situation. As caregiving teams grew, they found themselves working on communicating with their children’s educators. Beyond the scope of managing their child’s health information, family caregivers also navigated bureaucratic processes for their child’s home care. Conclusions: Family caregivers’ experiences of caring for CSHCN differ contextually and evolve as their child’s condition changes and they grow toward adulthood. Family caregivers recorded information using paper-based tools, which did not sufficiently support information management. They also experienced significant pressure in summarizing information and coordinating 2-way communication about the details of their child’s health with caregivers. The design of digital health care systems and tools for complex home care may improve care coordination if they provide an intuitive method for information interaction and significant utility by delivering situation-specific insights and adapting to unique and dynamic home care environments. Although these findings provide a foundational understanding, there is an opportunity for further research to generalize the findings. %M 34989692 %R 10.2196/28895 %U https://formative.www.mybigtv.com/2022/1/e28895 %U https://doi.org/10.2196/28895 %U http://www.ncbi.nlm.nih.gov/pubmed/34989692