TY -的AU -迈耶,安德里亚盟-里昂,伊丽莎白J AU -·弗莱德曼,Gilles盟——Forlenza迈克尔AU -扩孔器,芭芭拉·K PY - 2007 DA - 2007/5/14 TI -癌症幸存者如何提供支持癌症相关的互联网上的邮件列表乔- J地中海互联网Res SP - e12汽油六世- 9 - 2 KW -互联网KW -癌症KW -病人KW -幸存者KW -在线社区KW -邮件列表KW -在线支持组KW -定性研究AB -背景:互联网邮件列表是癌症幸存者寻找信息和支持的重要且日益普遍的方式。对这些邮件列表的大多数研究都调查了一种癌症的列表，最常见的是乳腺癌。对于从乳腺癌清单中吸取的经验教训是否适用于其他癌症，我们知之甚少。目的:本研究的目的是比较10个互联网癌症相关邮件列表的结构特征，并确定癌症幸存者提供支持的过程。方法:我们系统地研究了5个月内发送到由癌症在线资源协会(ACOR)托管的10个癌症邮件列表的9%的电子邮件信息样本。内容分析用于比较名单的结构特征，包括参与率和成员作为幸存者或照顾者的身份。我们使用主题分析来检查列表成员通过其消息文本提供的支持类型。结果:内容分析表明，列表成员的特征和用户参与率在列表中有所不同。专题分析显示很少有“跑题”的讨论。 Feedback from listowners indicated that they actively modeled appropriate communication on their lists and worked to keep discussions civil and focused. In all lists, members offered support much more frequently than they requested it; survivors were somewhat more likely than caregivers to offer rather than to ask for support. The most common topics in survivors’ messages were about treatment information and how to communicate with health care providers. Although expressions of emotional support were less common than informational support, they appeared in all lists. Many messages that contained narratives of illness or treatment did not specifically ask for help but provided emotional support by reassuring listmates that they were not alone in their struggles with cancer. Survivors’ explicit expressions of emotional support tended to be messages that encouraged active coping. Such messages also provided senders with opportunities to assume personally empowering “helper” roles that supported self-esteem. Conclusions: Many cancer survivors use the Internet to seek informational and emotional support. Across 10 lists for different cancers, informational support was the main communication style. Our finding of an emphasis on informational support is in contrast to most prior literature, which has focused on emotional support. We found the most common expressions of support were offers of technical information and explicit advice about how to communicate with health care providers. Topics and proportions of informational and emotional support differed across the lists. Our previous surveys of ACOR subscribers showed that they join the lists primarily to seek information; this qualitative study shows that they can and do find what they seek. They also find opportunities to play rewarding roles as support givers. SN - 1438-8871 UR - //www.mybigtv.com/2007/2/e12/ UR - https://doi.org/10.2196/jmir.9.2.e12 UR - http://www.ncbi.nlm.nih.gov/pubmed/17513283 DO - 10.2196/jmir.9.2.e12 ID - info:doi/10.2196/jmir.9.2.e12 ER -