TY - JOUR AU - El-Dassouki, Noor AU - Pfisterer, Kaylen AU - Benmessaoud, Camila AU - Young, Karen AU - Ge, Kelly AU - Lohani, Raima AU - Saragadam, Ashish AU - Pham, Quynh PY - 2022 DA - 2022/9/7 TI -支持心衰患者双性护理的技术价值:质性描述性研究JO - J Med Internet Res SP - e40108 VL - 24 IS - 9kw -心力衰竭KW -数字治疗KW -远程患者管理KW -护理KW -二元管理AB -背景:满足老年人口慢性健康需求的卫生服务需求很大，但由于临床资源的供应有限，仍然没有得到满足。具体而言，在管理心力衰竭(HF)方面，数字卫生试图解决COVID-19大流行期间的这一差距，但突出了那些在没有非正式护理人员支持的情况下无法使用技术介导的卫生保健服务的人的获取问题。心力衰竭症状和反复发作的复杂性要求许多患者与他们的ICs在一个护理二元组中管理他们的疾病，共同努力优化患者的结果和与健康相关的生活质量。然而，尽管心衰结果相互依赖，大多数心衰项目却错过了考虑二元视角的机会。目的:本研究旨在描述技术在支持心衰患者护理中的价值。方法:基于在加拿大多伦多Peter Munk心脏中心Medly HF管理项目中登记的患者观察到的独特参与模式，我们对ICs的便利样本进行了20次半结构化访谈。所有的采访都是通过共同开发的代码本的迭代改进进行分析的。该团队保持了反身性日志，以反映他们的定位对编码的影响。主题首先使用HF类型学(以患者为导向的二元组、以照顾者为导向的二元组和以协作为导向的二元组)演绎推导出来，然后根据van Houtven等人框架中的概念归纳提炼和重新分类。 Results: We believe that there is a need to formally and intentionally expand HF technologies to include dyadic needs and goals. We suggest defining 3 opportunities in which value can be added to technological design. First, identify how technology may be leveraged to increase psychological bandwidth by reducing uncertainty and providing peace of mind. We found that actionable feedback was highly desired by both partners. Second, develop technology that can serve as a member of the dyad’s support system. In our experience, automated prompts for patients to take measurements can mimic the support typically provided by ICs and ease their workload. Third, consider how technology can mitigate the dyad’s clinical knowledge requirements and learning curve. Our approach includes real-time actionable feedback paired with a human-in-the-loop, nurse-led model of care. Conclusions: Our findings identified a need to focus on improving the dyadic experience as a whole by building IC functionality into digital health self-management interventions. Through a shared model of care that supports the role of the patient in their own HF management, includes ICs to expand and enhance the patient’s capacity to care, and acknowledges the need of ICs to care for themselves, we anticipate improved outcomes for both partners. SN - 1438-8871 UR - //www.mybigtv.com/2022/9/e40108 UR - https://doi.org/10.2196/40108 UR - http://www.ncbi.nlm.nih.gov/pubmed/36069782 DO - 10.2196/40108 ID - info:doi/10.2196/40108 ER -