TY - JOUR AU - Adams, Elizabeth J AU - Tallman, David AU - Haynam, Marcy L AU - Nekhlyudov, Larissa AU - Lustberg, Maryam B PY - 2022 DA - 2022/9/20 TI -妇科癌症幸存者的社会心理需求:混合方法研究JO - J Med Internet Res SP - e37757 VL - 24 IS - 9kw -混合方法KW -定量KW -质化KW -癌症幸存者KW -妇科癌症KW -子宫癌KW -卵巢癌KW -癌症信息学KW -患者讨论KW -社交媒体AB -背景:互联网和社交媒体平台提供了对癌症幸存者及其护理人员生活经历的见解;然而，可用的叙述性数据量对于彻底分析来说往往是麻烦的。妇科癌症幸存者有独特的需求，例如与未来癌症的遗传易感性、癌症对性健康的影响、许多人被诊断出来的晚期阶段以及新治疗方法的涌入有关的需求。目的:本研究旨在提出一种独特的方法，利用基于互联网平台的大量数据进行混合方法分析。我们分析了美国癌症协会网站上妇科癌症幸存者发表的讨论板帖子，对评估幸存者的心理社会方面特别感兴趣。方法:所有来自美国癌症协会癌症幸存者网络(American Cancer Society Cancer Survivors Network)上卵巢、子宫和妇科癌症(除了卵巢和子宫)讨论版的帖子都被纳入其中。这些帖子是用Python在网上抓取的，并按照《癌症幸存者护理质量框架》中描述的心理社会主题进行组织。生成并验证每个主题相关的关键词。与预定的社会心理主题相关的关键词确定职位。 Quantitative analysis was completed using Python and R Foundation for Statistical Computing packages. Qualitative analysis was completed on a subset of posts as a proof of concept. Themes discovered through latent Dirichlet allocation (LDA), an unsupervised topic modeling technique, were assessed and compared with the predetermined themes of interest. Results: A total of 125,498 posts made by 6436 survivors of gynecological cancer and caregivers between July 2000 and February 2020 were evaluated. Of the 125,489 posts, 23,458 (18.69%) were related to the psychosocial experience of cancer and were included in the mixed methods psychosocial analysis. Quantitative analysis (23,458 posts) revealed that survivors across all gynecological cancer discussion boards most frequently discussed the role of friends and family in care, as well as fatigue, the effect of cancer on interpersonal relationships, and health insurance status. Words related to psychosocial aspects of survivorship most often used in posts included “family,” “hope,” and “help.” Qualitative analysis (20 of the 23,458 posts) similarly demonstrated that survivors frequently discussed coping strategies, distress and worry, the role of family and caregivers in their cancer care, and the toll of managing financial and insurance concerns. Using LDA, we discovered 8 themes, none of which were directly related to psychosocial aspects of survivorship. Of the 56 keywords identified by LDA, 2 (4%), “sleep” and “work,” were included in the keyword list that we independently devised. Conclusions: Web-based discussion platforms offer a great opportunity to learn about patient experiences of survivorship. Our novel methodology expedites the quantitative and qualitative analyses of such robust data, which may be used for additional patient populations. SN - 1438-8871 UR - //www.mybigtv.com/2022/9/e37757 UR - https://doi.org/10.2196/37757 UR - http://www.ncbi.nlm.nih.gov/pubmed/36125848 DO - 10.2196/37757 ID - info:doi/10.2196/37757 ER -