TY - JOUR AU - Kujala, Sari AU - Hörhammer, Iiris AU - Väyrynen, Akseli AU - Holmroos, Mari AU - Nättiaho-Rönnholm, Mirva AU - Hägglund, Maria AU - Johansen, Monika Alise PY - 2022 DA - 2022/6/6 TI -芬兰患者基于网络访问电子健康记录的经验:横断面调查JO - J Med Internet Res SP - e37438 VL - 24 IS - 6kw -患者门户KW - EHR KW -电子健康记录KW -开放笔记KW -患者访问KW -自我管理KW -全国调查AB -背景:提供访问电子健康记录的患者门户为患者更好地了解和自我管理自己的健康提供了一种手段。然而，患者对电子健康记录的访问引起了医生的许多关注，而且对通过成熟的患者门户访问其电子健康记录的患者的使用实践和经验知之甚少，该门户已向公民提供了五年多的时间。目的:我们的目的是确定患者的经验，使用国家患者门户网站访问他们的电子健康记录。特别是，我们专注于理解可用性相关的看法，以及阅读由卫生保健专业人员撰写的临床记录的好处和挑战。方法:通过2021年6月的一项基于网络的调查，从芬兰My Kanta患者门户网站的3135名患者用户收集数据(回复率:0.7%)。当患者退出患者门户时，他们会收到填写问卷的邀请。受访者被要求对患者门户的可用性进行评级，评级被用于计算系统可用性量表得分的近似值。患者还被问及这些功能的有用性，以及他们是否与卫生专业人员讨论过这些笔记。使用开放式问题来询问患者阅读卫生专业人员笔记的益处和挑战的经验。 Results: Overall, patient evaluations of My Kanta were positive, and its usability was rated as good (System Usability Scale score approximation: mean 72.7, SD 15.9). Patients found the portal to be the most useful for managing prescriptions and viewing the results of examinations and medical notes. Viewing notes was the most frequent reason (978/3135, 31.2%) for visiting the portal. Benefits of reading the notes mentioned by patients included remembering and understanding what was said by health professionals and the instructions given during an appointment, the convenience of receiving information about health and care, the capability to check the accuracy of notes, and using the information to support self-management. However, there were challenges related to difficulty in understanding medical terminology, incorrect or inadequate notes, missing notes, and usability. Conclusions: Patients actively used medical notes to receive information to follow professionals' instructions to take care of their health, and patient access to electronic health records can support self-management. However, for the benefits to be realized, improvements in the quality and availability of medical professionals’ notes are necessary. Providing a standard information structure could help patients find the information they need. Furthermore, linking notes to vocabularies and other information sources could also improve the understandability of medical terminology; patient agency could be supported by allowing them to add comments to their notes, and patient trust of the system could be improved by allowing them to control the visibility of the professionals’ notes. SN - 1438-8871 UR - //www.mybigtv.com/2022/6/e37438 UR - https://doi.org/10.2196/37438 UR - http://www.ncbi.nlm.nih.gov/pubmed/35666563 DO - 10.2196/37438 ID - info:doi/10.2196/37438 ER -