TY - JOUR AU - Cho, Youmin AU - Zhang, Huiting AU - Harris, Marcelline Ruth AU - Gong, Yang AU - Smith, Ellen Lavoie AU - Jiang, Yun PY - 2021 DA - 2011/3/12 TI -癌症患者接受和使用基于家庭的电子症状自我报告系统:系统综述JO - J Med Internet Res SP - e24638 VL - 23 IS - 3kw -症状KW -自我报告KW -远程医疗KW -技术KW -互联网KW -移动电话KW -患者偏好KW -癌症KW -患者报告结果AB -背景:电子症状自我报告系统(e-SRS)已被证明可以改善癌症患者的症状和生存。然而,使用e-SRS进行自愿症状自我报告的患者参与度并不理想。多种因素可能会潜在地影响患者对家庭e-SRS的接受度和参与度。然而,这些因素尚未在癌症人群中得到充分研究。目的:本研究的目的是了解癌症患者对基于家庭的e-SRS的接受和使用情况,并确定相关的促进因素和障碍。方法:搜索PubMed、CINAHL、Scopus和psyinfo(2010年1月至2020年3月),使用医学主题词(MeSH)术语和关键词,如症状自我报告、电子/技术、癌症及其同义词。包括关注癌症患者及其家人使用基于家庭的e-SRS的研究。仅排除了在临床环境中患者使用e-SRS的研究。在检索到的3740篇论文中,有33篇纳入了最后的审查。 Factors associated with patient acceptance and use of e-SRS were extracted and synthesized. Results: Most e-SRS were web based (22/33, 66%) or mobile app based (9/33, 27%). The e-SRS initial acceptance, represented by patient enrollment rates, ranged from 40% (22/55) to 100% (100/100). High e-SRS acceptance was rated by 69% (59/85) to 77.6% (337/434) of the patients after they used the system. The e-SRS use, measured by patients’ response rates to questionnaires (ranging from 1596/3521, 45.33% to 92%) or system log-on rates (ranging from 4/12, 33% to 99/100, 99%), declined over time in general patterns. Few studies (n=7) reported e-SRS use beyond 6 months, with the response rates ranging from 62% (40/64) to 85.1% (541/636) and the log-on rates ranging from 63.6% (103/162) to 77% (49/64). The availability of compatible devices and technical support, interactive system features, information accessibility, privacy, questionnaire quality, patient physical/psychosocial status, and age were associated with patient acceptance and use of home-based e-SRS. Conclusions: Acceptance and use of home-based e-SRS by patients with cancer varied significantly across studies, as assessed by a variety of approaches. The lack of access to technology has remained a barrier to e-SRS adoption. Interactive system features and personalized questionnaires may increase patient engagement. More studies are needed to further understand patients’ long-term use of home-based e-SRS behavior patterns to develop personalized interventions to support symptom self-management and self-reporting of patients with cancer for optimal health outcomes. SN - 1438-8871 UR - //www.mybigtv.com/2021/3/e24638 UR - https://doi.org/10.2196/24638 UR - http://www.ncbi.nlm.nih.gov/pubmed/33709929 DO - 10.2196/24638 ID - info:doi/10.2196/24638 ER -
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