TY - JOUR AU - Baun, Christina AU - Vogsen, Marianne AU - Nielsen, Marie Konge AU - Høilund-Carlsen, paul Flemming AU - Hildebrandt, Malene Grubbe PY - 2020 DA - 2020/2/10 TI -转移性乳腺癌患者电子扫描结果的展望:混合方法研究乔- J地中海互联网Res SP - e15723六世- 22 - 2 KW -病人访问电子健康记录KW -电子健康记录千瓦病人访问记录KW -扫描结果KW -乳腺癌KW -病人角度KW -乳腺肿瘤AB -背景:Patient-accessible电子健康记录给患者快速和方便地访问他们的医疗数据,使他们能够查看自己的诊所访问之前在线测试结果。然而，医院报告对患者来说可能很难理解，并可能导致不必要的焦虑。目的:我们旨在调查丹麦转移性乳腺癌患者使用电子健康记录查看自己的扫描结果的态度和经验。方法:我们于2018年在我们的机构进行了一项前瞻性的顺序设计混合方法研究。参与者是患有转移性乳腺癌的妇女，她们每3个月进行一次扫描(联合正电子发射断层扫描和计算机断层扫描或单独进行计算机断层扫描)以监测治疗效果。参与者首先收到一份关于他们的知识和使用在线访问扫描结果的在线问卷。然后，我们对4名使用在线访问查看扫描结果的女性进行了半结构化访谈。结果:共有46例患者接受问卷调查(中位年龄66岁，SD 11.8，范围34-84岁)。在这些女性中，38名(83%)完成了调查(中位年龄69岁，标准差10.7，范围42-84岁)。 Most patients (34/38) were aware of the opportunity to access their reports online, but only 40% (15/38) used this access to read their scan results. Barriers to online access were (1) anxiety over reading the scan results in the absence of clinician support, and (2) a preference to receive all disease information at their next hospital appointment. The patients who read their scan result found that facilitators were greater transparency and empowerment, and barriers were the consequences of reading bad news, the feeling of dilemma about the access, and the medical terminology. Conclusions: Patients with metastatic breast cancer generally had a positive attitude toward electronic access to their scan results, and those who used this opportunity played a greater participatory role in their disease and its management. Others described the potential distress this opportunity caused. The study findings suggest that immediate online access to scan results should be available to patients, but it needs a support function alongside that ensures optimal patient care. SN - 1438-8871 UR - //www.mybigtv.com/2020/2/e15723 UR - https://doi.org/10.2196/15723 DO - 10.2196/15723 ID - info:doi/10.2196/15723 ER -