TY - JOUR AU - Quinn, Charlene Connolly AU - Chard, Sarah AU - Roth, Erin G AU - Eckert, J Kevin AU - Russman, Katharine M AU - Cross, Raymond K PY - 2019 DA - 2019/06/03 TI -炎性肠病患者远程医疗(TELE-IBD)临床试验:研究背景:炎症性肠病(IBD)，包括克罗恩病和溃疡性结肠炎，在美国影响着100万至300万人。远程医疗在治疗IBD方面显示出了希望。IBD患者远程医疗研究(TELE-IBD)的目的是比较IBD患者接受远程医疗与标准治疗的1年随机临床试验中的疾病活动性和生活质量(QoL)。治疗组在疾病活动度和生活质量方面均有改善，但组间无显著差异。文本干预的依从性低于目标目标的80%。目的:为了了解远程监测的依从性，本定性评估的目的是获得远程ibd试验参与者的看法，包括他们对未来监测的建议。方法:在本研究中，前2年在3个三级转诊中心就诊的IBD症状恶化的患者被随机分配到每隔一周、每周或标准护理通过短信(短消息服务，SMS)远程监测。参与者(n=348)被均匀地纳入治疗组，259人(74.4%)完成了研究。在这项研究中，从TELE-IBD试验人群中抽取了一个有目的的患者样本(N=15)和非患者样本(N=14)。 Adherence was defined as the completion of 80% (278/348) or more of the weekly or every other week self-assessments. Semistructured interviews conducted by phone surveyed (1) the strengths and benefits of TELE-IBD, (2) challenges associated with using TELE-IBD, and (3) how to improve the TELE-IBD intervention. Interviews were recorded, professionally transcribed, and coded based on a priori concepts and emergent themes with the aid of ATLAS.ti, version.7 qualitative data analysis software. Results: Participants' discussions centered on 3 elements of the intervention: (1) self-assessment questions, (2) action plans, and (3) educational messages. Participants also commented on text-based platform, depression and adherence, TELE-IBD system in place of office visit, and their recommendations for future TELE-IBD systems. Adherent and nonadherent participants prefer a flexible system that is personalized, including targeted education messages, and they perceive the intervention as effective in facilitating IBD self-management. Conclusions: Participants identified clear benefits to the TELE-IBD system, including obtaining a better understanding of the disease process, monitoring their symptoms, and feeling connected to their health care provider. Participants’ perceptions obtained in this qualitative study will assist in improving the TELE-IBD system to be more responsive to patients with IBD. SN - 1438-8871 UR - //www.mybigtv.com/2019/6/e14165/ UR - https://doi.org/10.2196/14165 UR - http://www.ncbi.nlm.nih.gov/pubmed/31162128 DO - 10.2196/14165 ID - info:doi/10.2196/14165 ER -