TY - JOUR AU - Brochu, Felicia AU - Robins, Stephanie AU - Miner, Skye A AU - Grunberg, Paul H AU - Chan, Peter AU - Lo, Kirk AU - Holzer, Hananel E G AU - Mahutte, Neal AU - Ouhilal, Sophia AU - Tulandi, Togas AU - Zelkowitz, Phyllis PY - 2019 DA - 2019/12/12 TI -在互联网上搜索不孕不育信息:患者需求和偏好调查JO - J Med Internet Res SP - e15132 VL - 21 IS - 12 KW -不孕不育KW -互联网KW -消费者健康信息KW -患者满意度KW -压力，心理AB -背景:鉴于不孕不育诊断和治疗的复杂性和互联网查找健康相关信息的方便性，接受不孕不育治疗的人经常使用网络资源来获取不孕不育信息和支持。然而，人们对不孕症患者在互联网上搜索的信息和支持资源的类型以及这些资源是否满足他们的需求知之甚少。目的:本研究的目的是(1)检查哪些个体因素，即人口特征和痛苦，与在互联网上搜索不同类型的不孕不育相关信息和支持资源有关;(2)确定网络资源是否满足患者的需求。方法:寻求不孕症治疗的男性和女性对一项评估使用网络资源获取不孕症相关信息和支持的调查做出了回应。调查进一步评估了对网络资源的满意度以及感知压力和抑郁症状。结果:共有567名参与者，包括254名男性和313名女性，完成了调查。大多数参与者(490/558,87.8%)曾在互联网上搜索不孕不育信息和支持。搜索者更有可能是女性(P<.001)、受过高等教育(P=.04)、长期患者(P=.03)和更痛苦(P=.04)。不孕症的原因、治疗方案和有关不孕症的科学文献是搜索次数最多的三个话题，而与家人和朋友讨论治疗的方法、代孕和寻求同伴支持的方法是搜索次数最少的三个话题。 Of those who searched the internet, 70.9% (346/488) indicated that their needs were met by Web-based information, whereas 29.1% (142/488) said that their needs were not met. Having unmet needs was related to greater levels of perceived stress (P=.005) and depressive symptomatology (P=.03). Conclusions: This study provides evidence for the important role of the internet in accessing infertility information and support and for the ability of Web-based resources to meet patients’ needs. However, although distressed patients reported particularly high rates of searching, their needs were not always met, suggesting that they may benefit from alternative sources of information and support or guidance from health care providers when searching the internet. SN - 1438-8871 UR - //www.mybigtv.com/2019/12/e15132 UR - https://doi.org/10.2196/15132 UR - http://www.ncbi.nlm.nih.gov/pubmed/31829963 DO - 10.2196/15132 ID - info:doi/10.2196/15132 ER -