TY - JOUR AU - Nguyen, Minh Hao AU - Smets, Ellen M A AU - Bol, Nadine AU - Loos, Eugène F AU - van Laarhoven, Hanneke W M AU - Geijsen, Debby AU - van Berge Henegouwen, Mark I AU - Tytgat, Kristien M A J AU - van Weert, Julia C M PY - 2019 DA - 2019/10/1 TI -为年轻和老年癌症患者量身定制的基于web的信息:JO - J Med Internet Res SP - e14407 VL - 21 IS - 10kw -基于网络的教育干预KW -互联网KW -视听媒体KW -患者教育KW -癌症KW -衰老KW -记忆KW -焦虑KW -患者报告结果KW -患者参与KW -咨询KW -健康交流KW -随机对照试验AB -背景:许多癌症患者,包括年龄较大的患者(年龄≥65岁),都通过网络为他们的医生就诊做准备。特别是,由于与年龄相关的感觉(如视力和听力受损)和认知能力下降(如处理速度降低),老年患者对信息呈现模式(如通过文本、视觉或视听模式)有不同的需求。因此,针对老年患者群体的基于web的信息,在根据年龄相关的能力和偏好进行定制时,可能会更有效地使用和处理,并更积极地进行评估。这反过来可能有利于患者的预后。目的:本随机对照试验测试了基于网络的量身定制教育干预在新诊断的年轻(<65岁)和年长(≥65岁)癌症患者中的效果。我们将观看模式定制网站(即,使患者能够使用文本、视觉和视听模式定制信息)的干预组与观看非定制网站(即,只有文本、文本配图像和文本配视频)的对照组进行比较。我们检验了网站体验结果(即网站满意度、网站参与度、知识、焦虑和沟通自我效能)和咨询体验结果(即咨询期间的提问、焦虑和信息回忆)。方法:来自多学科门诊(N=232)的患者在他们的医院会诊讨论诊断和治疗之前,浏览一个模式定制或非定制的网站作为准备。 Data were collected before (T1), during (T2), and after (T3) visitation. Website experience outcomes were assessed with questionnaires (T1). Patients’ question asking was coded from videotaped consultations, and anxiety was assessed through a questionnaire (T2). Telephone interviews were conducted to assess knowledge acquired from the website before (T1) and after consultation (T3), and information recall from the consultation (T3). Results: The preparatory website was well used across all conditions (mean 34 min). Younger patients viewing the mode-tailored website were more satisfied before consultation (P=.02) and reported lower anxiety after consultation (P=.046; vs text only). This pattern was not found in older patients. Mode tailoring yielded no other significant differences in patient outcomes. Regression analyses showed that website involvement (beta=.15; P=.03) and, to a lesser extent, website satisfaction (beta=.15; P=.05) positively associated with knowledge before consultation (T1). In turn, higher knowledge before consultation (beta=.39; P<.001), together with time on the website (beta=.21; P=.002; T1), predicted information recall from consultations (T3). Patients with higher knowledge before consultation (T1) also reported higher knowledge from the website afterward (T3; beta=.22; P=.003). Conclusions: Offering preparatory online information before consultations benefits information processing and patient outcomes of both younger and older newly diagnosed patients with cancer. Younger patients benefit even more when information is offered in a mode-tailored manner. We discuss the theoretical, methodological, and practical implications for patient-provider communication research in an electronic health era. Clinical Trial: Netherlands Trial Register NTR5904; https://www.trialregister.nl/trial/5750 SN - 1438-8871 UR - //www.mybigtv.com/2019/10/e14407 UR - https://doi.org/10.2196/14407 UR - http://www.ncbi.nlm.nih.gov/pubmed/31573911 DO - 10.2196/14407 ID - info:doi/10.2196/14407 ER -
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