TY - JOUR AU - Wikman, Anna AU - Kukkola, Laura AU - Börjesson, Helene AU - Cernvall, Martin AU - Woodford, Joanne AU - Grönqvist, Helena AU - von Essen, Louise PY - 2018 DA - 2018/04/18 TI -为以前接受过癌症治疗的儿童的父母开发一个互联网管理的认知行为治疗计划(ENGAGE):参与行动研究方法JO - J Med Internet Res SP - e133 VL - 20 IS - 4kw -认知疗法KW -心理学，临床KW -电子疗法KW -社区参与KW -瑞典AB -背景:抚养一个患有癌症的孩子是一种痛苦的经历，并且在治疗完成后的几年后，一组父母报告了负面的长期心理后果。然而，对于在治疗结束后因儿童癌症疾病而经历痛苦的父母，缺乏循证心理干预措施。目的:本研究的一个目的是为以前接受过癌症治疗的儿童的父母开发一种网络管理的、基于认知行为疗法的、心理的、指导的、自助干预(ENGAGE)。另一个目的是确定可接受的程序，用于未来的可行性和有效性研究，测试和评估干预措施。方法:采用参与式行动研究方法。这项研究包括面对面的研讨会和相关的网络练习。共有6位父母(4位母亲，2位父亲)的孩子曾接受过癌症治疗，他们作为父母参与了研究。此外，2名临床心理学家作为专家研究伙伴参与研究。研究伙伴和研究小组成员在整个研究过程中相互协作。 Data were analyzed iteratively using written summaries of the workshops and Web-based exercises parallel to data collection. Results: A 10-week, internet-administered, cognitive behavior therapy–based, psychological, guided, self-help intervention (ENGAGE) was developed in collaboration with parent research partners and expert research partners. The content of the intervention, mode and frequency of e-therapist support, and the individualized approach for feedback were modified based on the research partner input. Shared solutions were reached regarding the type and timing of support from an e-therapist (eg, initial video or telephone call, multiple methods of e-therapist contact), duration and timing of intervention (eg, 10 weeks, 30-min assessments), and the removal of unnecessary support functions (eg, removal of chat and forum functions). Preferences for study procedures in future studies testing and evaluating the intervention were discussed; consensus was not reached for all aspects. Conclusions: To the best of our knowledge, this study is the first use of a participatory action research approach to develop a psychological intervention for parents of children previously treated for cancer and to identify acceptable study procedures. Involvement of parents with lived experience was vital in the development of a potentially relevant and acceptable intervention for this population. SN - 1438-8871 UR - //www.mybigtv.com/2018/4/e133/ UR - https://doi.org/10.2196/jmir.9457 UR - http://www.ncbi.nlm.nih.gov/pubmed/29669710 DO - 10.2196/jmir.9457 ID - info:doi/10.2196/jmir.9457 ER -