TY - JOUR AU - Moll, Jonas AU - Rexhepi, Hanife AU - Cajander， Åsa AU - Grünloh, Christiane AU - Huvila, Isto AU - Hägglund, Maria AU - Myreteg, Gunilla AU - Scandurra, Isabella AU - Åhlfeldt，玫瑰- mharie PY - 2018 DA - 2018/11/01 TI -患者访问电子健康记录的经验:瑞典全国患者调查JO - J Med Internet Res SP - e278 VL - 20 IS - 11 KW - eHealth KW -医疗记录KW -全国调查KW -患者KW -患者可访问的电子健康记录KW -患者门户KW -个人健康记录AB -背景:在国际上，有一种向患者提供基于web的访问其电子健康记录(EHRs)的运动。在瑞典，乌普萨拉地区于2012年率先引入了患者可访问的电子病历(PAEHRs)。到2016年夏天，21个县议会中有17个已经允许公民通过网络访问他们的医疗信息。已经开展了关于PAEHRs对卫生保健专业人员工作环境影响的研究，但到目前为止，在瑞典或更普遍的欧洲，很少对患者使用PAEHRs的经验进行广泛的研究。目的:本研究的目的是调查患者通过瑞典国家患者门户网站访问其电子病历的经历。在本研究中，我们主要描述用户特征、使用方法和对系统的态度。方法:基于之前对患者和卫生保健专业人员的访谈和调查研究，设计了一项全国患者调查。数据收集时间为2016年5个月。这项调查是通过瑞典名为Journalen的PAEHR系统进行的。 The total number of patients that logged in and could access the survey during the study period was 423,141. In addition to descriptive statistics reporting response frequencies on Likert scale questions, Mann-Whitney tests, Kruskal-Wallis tests, and chi-square tests were used to compare answers between different county councils as well as between respondents working in health care and all other respondents. Results: Overall, 2587 users completed the survey with a response rate of 0.61% (2587/423,141). Two participants were excluded from the analysis because they had only received care in a county council that did not yet show any information in Journalen. The results showed that 62.97% (1629/2587) of respondents were women and 39.81% (1030/2587) were working or had been working in health care. In addition, 72.08% (1794/2489) of respondents used Journalen about once a month, and the main reason for use was to gain an overview of one’s health status. Furthermore, respondents reported that lab results were the most important information for them to access; 68.41% (1737/2539) of respondents wanted access to new information within a day, and 96.58% (2454/2541) of users reported that they are positive toward Journalen. Conclusions: In this study, respondents provided several important reasons for why they use Journalen and why it is important for them to be able to access information in this way—several related to patient empowerment, involvement, and security. Considering the overall positive attitude, PAEHRs seem to fill important needs for patients. SN - 1438-8871 UR - //www.mybigtv.com/2018/11/e278/ UR - https://doi.org/10.2196/jmir.9492 UR - http://www.ncbi.nlm.nih.gov/pubmed/30389647 DO - 10.2196/jmir.9492 ID - info:doi/10.2196/jmir.9492 ER -