TY - JOUR AU - Nicolaije, Kim AH AU - Ezendam, Nicole PM AU - Pijnenborg, Johanna MA AU - Boll, Dorry AU - Vos, Maria Caroline AU - Kruitwagen, Roy FPM AU - van de pollo - franse, Lonneke V PY - 2016 DA - 2016/07/08 TI -基于纸张的生存护理计划可能对在互联网上搜索疾病相关信息的癌症患者没有多大帮助:注册系统肿瘤妇科(ROGY)护理随机试验结果JO - J医学互联网Res SP - e162 VL - 18 IS - 7kw -存活护理计划KW -互联网使用KW -实用聚类随机试验KW -子宫内膜肿瘤KW -患者报告结果KW -信息提供AB -背景:医学研究所为所有癌症幸存者推荐存活护理计划(SCPs)。然而，目前尚不清楚某些患者群体是否可能受益于scp。目的:目的是评估自动生成的纸质SCP对患者对信息提供和护理的满意度、疾病感知和医疗保健利用的影响是否受到疾病相关互联网使用的调节。方法:在实用集群随机注册系统肿瘤妇科(ROGY)护理试验中，12家医院被随机分为SCP护理组和常规护理组。新诊断的子宫内膜癌患者在诊断后完成问卷调查(N=221;回答:74.7%，221/296)，6个月(n=158)和12个月(n=147)，包括患者对信息提供和护理的满意度，疾病认知，医疗保健利用(患者在过去6个月内就其癌症向医学专家或初级保健医生咨询的次数)，以及与疾病相关的互联网使用(患者是否使用互联网查找癌症信息)。结果:221例患者中有80例(36.2%)使用互联网获取疾病相关信息。与疾病相关的互联网使用调节了SCP护理在疾病信息接收量(P=.03)和医学测试(P=.01)、信息的帮助性(P=.01)以及患者对其疾病的理解程度(P=.04)方面的效果。所有分层分析均无统计学意义。 However, it appeared that patients who did not seek disease-related information on the Internet in the SCP care arm reported receiving more information about their disease (mean 63.9, SD 20.1 vs mean 58.3, SD 23.7) and medical tests (mean 70.6, SD 23.5 vs mean 64.7, SD 24.9), finding the information more helpful (76.7, SD 22.9 vs mean 67.8, SD 27.2; scale 0-100), and understanding their illness better (mean 6.6, SD 3.0 vs mean 6.1, SD 3.2; scale 1-10) than patients in the usual care arm did. In addition, although all stratified analyses were not significant, patients who did seek disease-related information on the Internet in the SCP care arm appeared to receive less information about their disease (mean 65.7, SD 23.4 vs mean 67.1, SD 20.7) and medical tests (mean 72.4, SD 23.5 vs mean 75.3, SD 21.6), did not find the information more helpful (mean 78.6, SD 21.2 vs mean 76.0, SD 22.0), and reported less understanding of their illness (mean 6.3, SD 2.8 vs mean 7.1, SD 2.7) than patients in the usual care arm did. Conclusions: Paper SCPs appear to improve the amount of information received about the disease and medical tests, the helpfulness of the information, and understanding of the illness for patients who do not search for disease-related information on the Internet. In contrast, paper SCPs do not seem beneficial for patients who do seek disease-related information on the Internet. Trial Registration: ClinicalTrials.gov NCT01185626; https://clinicaltrials.gov/ct2/show/NCT01185626 (Archived by WebCite at http://www.webcitation.org/6fpaMXsDn) SN - 1438-8871 UR - //www.mybigtv.com/2016/7/e162/ UR - https://doi.org/10.2196/jmir.4914 UR - http://www.ncbi.nlm.nih.gov/pubmed/27392550 DO - 10.2196/jmir.4914 ID - info:doi/10.2196/jmir.4914 ER -