TY - JOUR AU - Magnezi, Racheli AU - Bergman, Yoav S AU - Grosberg, Dafna PY - 2014 DA - 2014/01/10 TI -在线活动和参与治疗影响慢性疾病患者对社会健康网络的感知效能JO - J Med Internet Res SP - e12 VL - 16 IS - 1kw -互联网KW -社会健康网络KW -患者激活措施(PAM) KW -在线健康网络AB -背景:使用在线健康相关社交网络提供支持、点对点连接和获取健康信息的人数急剧增加。参与与健康相关的在线社交网络可以提高患者的自我效能和赋权，因为他们获得了更有效地管理其慢性健康状况的知识和工具。因此，我们可以推断，患者的激活，个人能够管理自己的医疗保健的程度，也会增加。然而，人们对参与在线健康相关社交网络和患者激活对跨疾病群体网站感知有用性的影响知之甚少。目的:本研究的目的是评估参与在线健康相关社交网络的影响和益处，并确定哪些变量预测感知网站有用性，同时检查患者的激活情况。方法:数据来自“Camoni”，希伯来语第一个健康相关的社交网络。它提供医疗建议，包括博客、论坛、支持小组、内部邮件、聊天，以及咨询专家的机会。这项研究集中在该网站最大和最活跃的五个社区:糖尿病、心脏病、肾病、脊髓损伤和抑郁/焦虑。招募工作进行了三个月，在此期间，研究问卷的链接显示在卡莫尼的主页上。 Three questionnaires were used: a 13-item measure of perceived usefulness (Cronbach alpha=.93) to estimate the extent to which an individual found the website helpful and informative, a 9-item measure of active involvement in the website (Cronbach alpha=.84), and The Patient Activation Measure (PAM-13, Cronbach alpha=.86), which assesses a patient’s level of active participation in his or her health care. Results: There were 296 participants. Men 30-39 years of age scored higher in active involvement than those 40-49 years (P=.03), 50-64 years (P=.004), or 65+ years (P=.01). Respondents 20-29 years of age scored higher in perceived usefulness than those 50-64 years (P=.04) and those 65+ years (P=.049). Those aged 20-29 years scored significantly lower on the PAM-13 scale than those aged 30-39 years (P=.01) and 50-64 years (P=.049). Men and women had similar PAM-13 scores (F9,283=0.17, P=.76). Several variables were significant predictors of perceived usefulness. Age was a negative predictor; younger age was indicative of higher perceived usefulness. Active involvement was a positive predictor. There was a negative relationship found between PAM-13 scores and perceived usefulness, as taking a less active role in one’s own medical care predicted higher perceived website usefulness. A trend toward higher frequency of website activity was associated with increased perception of usefulness. Conclusions: Online health-related social networks can be particularly helpful to individuals with lower patient activation. Our findings add information regarding the social and medical importance of such websites, which are gradually becoming an inseparable part of day-to-day chronic disease management in the community. SN - 14388871 UR - //www.mybigtv.com/2014/1/e12/ UR - https://doi.org/10.2196/jmir.2630 UR - http://www.ncbi.nlm.nih.gov/pubmed/24413148 DO - 10.2196/jmir.2630 ID - info:doi/10.2196/jmir.2630 ER -