TY -的盟Merolli马克AU -灰色,凯萨琳盟——Martin-Sanchez费尔南多PY - 2014 DA - 2014/12/22 TI -治疗相应的社交媒体:紧急主题从全球在线调查慢性疼痛患者的乔- J地中海互联网Res SP - e284六世- 16 - 12 KW -社会媒体KW -慢性疾病KW -慢性疼痛KW -治疗相应KW -主题内容分析KW - patient-reported结果KW -模型AB -背景:研究继续提出微弱的建议，即社交媒体非常适合加强慢性疾病的管理和改善健康结果。各种研究提出了使用社交媒体的健康结果的定性报告，并研究了通过不同社交媒体发生的话语和传播主题。然而，目前还缺乏已发表的研究来检验和揭示推动社交媒体效应的潜在治疗机制。目的:本文提出了一项定性分析，详细描述了社交媒体在治疗上为自我管理自己病情的慢性疼痛患者提供了什么。从治疗可提供性的角度来看，我们的目标是制定一个初步的概念模型，旨在更好地理解社交媒体“如何”影响患者的结果。方法:共有218名慢性疼痛(PWCP)患者完成了一项在线调查，调查患者报告的社交媒体使用结果(PROs)。除了收集的定量数据外，参与者还有机会就他们使用社交媒体作为慢性疼痛管理的一部分提供进一步的公开评论;68/218个独立用户(31.2%)选择提供这些自由文本回复。通过专题内容分析，对10种社交媒体类型的117条自由文本回复进行了编码。 Quotes were extracted and tabulated based on therapeutic affordances that we had previously identified. Inductive analysis was then performed to code defining language and emergent themes central to describing each affordance. Three investigators examined the responses, developed the coding scheme, and applied the coding to the data. Results: We extracted 155 quotes from 117 free-text responses. The largest source of quotes came from social network site users (78/155, 50.3%). Analysis of component language used to describe the aforementioned affordances and emergent themes resulted in a final revision and renaming of therapeutic affordances: "exploration" (52/155, 33.5% of quotes), "connection" (50/155, 32.3% of quotes), "narration" (33/155, 21.3% of quotes), "adaptation" (13/155, 8.4% of quotes), and "self-presentation" (7/155, 4.5% of quotes). Of the most described affordances, "exploration" was based on a propensity for participants to explain their social media use for information seeking purposes. "Connection" placed greater emphasis on interaction, highlighting themes of "exchanging information" and "mitigating isolation". Responses regarding "narration" highlighted the value of shared experiences and the emotionally cathartic role this plays. Conclusions: Much of the efficacy of social media may be explicable via a closer examination of therapeutic affordances. Particular areas that warrant attention include social media’s ability to filter and guide people to useful information, connect individuals, and share experiences. Further research into a variety of chronic conditions is warranted. Coupled with the results of the present study, a greater theoretical basis detailing how social media may foster health outcomes may lead to an improved evidence base for conducting research and may inform recommendations for social media use in chronic disease management. SN - 1438-8871 UR - //www.mybigtv.com/2014/12/e284/ UR - https://doi.org/10.2196/jmir.3494 UR - http://www.ncbi.nlm.nih.gov/pubmed/25533453 DO - 10.2196/jmir.3494 ID - info:doi/10.2196/jmir.3494 ER -