TY - JOUR AU - van der Vaart, Rosalie AU - Drossaert, Constance HC AU - de Heus, Miriam AU - Taal, Erik AU - van de Laar, Mart AFJ PY - 2013 DA - 2013/02/11 TI -测量风湿病患者的实际电子健康素养:使用健康1.0和健康2.0应用程序遇到的问题的定性分析JO - J医疗互联网Res SP - e27 VL - 15 IS - 2千瓦-电子健康千瓦-识字千瓦-互联网千瓦-在线千瓦-健康信息千瓦-健康2.0千瓦-技能千瓦-医疗保健AB -背景:互联网通过信息网站(健康1.0)和交互式应用程序(如同行支持论坛、在线咨询和对电子医疗记录的洞察)为疾病管理提供了各种机会。然而，从健康1.0和健康2.0应用程序中受益于个人健康需要各种技能，即所谓的电子健康素养。目的:了解风湿病患者的电子健康素养以及他们在使用与疾病相关的互联网时遇到的问题类型。方法:在两项研究中，患者被问及他们目前与疾病相关的互联网使用情况，并在性能测试中观察他们的电子健康素养。在研究1中，15名患者(39-74岁)在互联网上执行了6项信息检索任务(健康1.0)。在研究2中，16名患者(24-72岁)在基于医院的在线门户网站上执行3个健康2.0任务，在交互式网站上执行2个健康2.0任务。参与者被要求在执行任务时大声思考，并记录下屏幕活动。问题的类型和频率由两名独立的研究人员确定，并使用归纳分析进行分类。 Results: Almost all patients in our studies had searched the Internet for information about rheumatic diseases in the past. Fewer patients had used Health 2.0 applications, but many were nevertheless enthusiastic about the possibilities from Health 2.0 applications after finishing the assignments. However, nearly all participants experienced difficulties, and a substantial number of participants were not able to complete all of the assignments. Encountered problems could be divided into 6 sequential categories: (1) operating the computer and Internet browser, (2) navigating and orientating on the Web, (3) utilizing search strategies, (4) evaluating relevance and reliability, (5) adding content to the Web, and (6) protecting and respecting privacy. Most severe difficulties occurred in levels 3 and 4—in formulating a search query, evaluating the source of the information, and in scanning a website for relevant information. Conclusions: Many patients have insufficient skills to properly use Health 1.0 and Health 2.0. Formulating proper search strategies and evaluating the found information caused problems among the majority of patients. Concerning Health 2.0, use and awareness of these applications is low and patients should be guided in the use of them. Our findings may contribute to the awareness of patients’ eHealth literacy problems among health professionals, and stress the importance of usability guidelines in Web design. SN - 1438-8871 UR - //www.mybigtv.com/2013/2/e27/ UR - https://doi.org/10.2196/jmir.2428 UR - http://www.ncbi.nlm.nih.gov/pubmed/23399720 DO - 10.2196/jmir.2428 ID - info:doi/10.2196/jmir.2428 ER -