TY -的AU -科恩,埃盟——Belkora杰夫AU -泰勒,乔安妮盟——称琼AU - -迪尔岭,玛丽乔盟——格兰马草,拉克希盟达根,布伦达盟——Illi朱莉AU - Pederson茱莉亚盟,Anand Aprajita AU -邓,亚历山德拉AU - McCreary,艾琳AU -摩尔,丹盟——Tripathy Debu盟——贺加斯、迈克尔- AU -利伯曼,莫顿盟——公园,约翰AU -埃瑟曼,劳拉PY - 2012 DA - 2012/07/11 TI -采用,可接受性,乳腺癌在线临床试验匹配网站的准确性[J] Med Internet Res SP - e97 VL - 14 IS - 4kw -乳腺癌KW -临床试验KW -癌症信息AB -背景:参加临床试验的乳腺癌患者不到5%。为了提高患者对试验的认识和机会，我们创建了BreastCancerTrials.org，这是一个临床试验匹配网站。BreastCancerTrials.org根据患者自述的乳腺癌病史将其与试验相匹配。它还提供了一个信息平台，患者可以通过这个平台向参与研究的网站自我推荐。目的:评估研究机构的采用情况、患者的接受程度以及患者向BreastCancerTrials.org提供信息的准确性。方法:我们联系了北加州的13个研究地点，在BreastCancerTrials.org上列出了他们的试验。对于采用，我们检查了与BreastCancerTrials.org合作的研究站点的意愿。为了便于接受，我们分析了在网站上线后的前14个月内完成BreastCancerTrials.org健康历史问卷调查的访问者的使用统计数据，并调查了在网站上线一年内访问该网站的用户的使用体验。为了准确起见，我们比较了20名患者自我报告的健康史和他们的医疗记录。 The health history questionnaire was divided into four sections: About Me, personal information including date of birth and sex; My Health as of Today, current status including cancer stage, menopausal status, and sites with evidence of disease; My Cancer, diagnostic information such as hormone and human epidermal growth factor receptor 2 status; and My Treatment, an itemized record of past treatment including responses to therapy. Results: A total of 12 sites contributed 55 trials. Regarding acceptability, 733 visitors registered on the website; 428 reported their health history; and 407 matched to at least one trial. Of 375 patients who were sent a survey, 75 responded (20%); 23 of the 75 (31%) contacted a research site, 12 of the 23 (52%) were eligible for a trial, and 5 of the 12 (42%) reported enrolling. As for accuracy, 20 clinic visitors reported 1456 health history items, 1324 of which matched their clinic record (90.93%). Conclusions: BreastCancerTrials.org was adopted by research sites. Patients found it acceptable and were able to provide accurate information for trial matching. Based on our findings, we launched an upgraded version of BreastCancerTrials.org as a national service in October 2008. SN - 1438-8871 UR - //www.mybigtv.com/2012/4/e97/ UR - https://doi.org/10.2196/jmir.1855 UR - http://www.ncbi.nlm.nih.gov/pubmed/22784878 DO - 10.2196/jmir.1855 ID - info:doi/10.2196/jmir.1855 ER -