TY - JOUR AU - Diefenbach, Michael A AU - Mohamed, Nihal E AU - Butz, Brian P AU - Bar-Chama, Natan AU - Stock, Richard AU - Cesaretti, Jamie AU - Hassan, Waleed AU - Samadi, David AU - Hall, Simon J PY - 2012 DA - 2012/01/13 TI -早期前列腺癌患者基于互联网/ cd - rom的教育和决策计划的可接受性和初步可行性:随机试点研究JO - J Med Internet Res SP - e6 VL - 14 IS - 1kw -多媒体KW -软件KW -前列腺癌KW -患者教育KW -治疗决策KW -治疗KW -决策AB -背景:前列腺癌是影响美国男性的最常见癌症。局限性疾病的管理方案是存在的，但仍需出现以证据为基础的治疗标准。虽然5年生存率接近98%，但所有治疗方案都有可能出现严重的副作用，如勃起功能障碍和尿失禁。因此，建议患者积极参与治疗决策过程。我们开发了一个以互联网/唯读光碟为基础的前列腺多媒体互动教育系统(PIES)，以提高病人的治疗决策。通过使用视频、动画、图形和文本的直观界面，向患者提供有关前列腺癌及其治疗的信息。目的:(1)检查前列腺癌治疗干预的可接受性和可行性，并报告该项目在新诊断前列腺癌患者中的初步结果;(2)探索根据参与者的信息寻求风格定制前列腺癌治疗信息对研究结果的潜在影响。方法:参与者(n = 72)为新诊断的局限性前列腺癌患者，尚未做出治疗决定。患者被随机分配到3个实验条件:(1)对照条件(通过标准的国家癌症研究所手册提供信息; 26%), and PIES (2) with tailoring (43%) and (3) without tailoring to a patient’s information-seeking style (31%). Questionnaires were administrated before (t1) and immediately after the intervention (t2). Measurements include evaluation and acceptability of the PIES intervention, monitoring/blunting information-seeking style, psychological distress, and decision-related variables (eg, decisional confidence, feeling informed about prostate cancer and treatment, and treatment preference). Results: The PIES program was well accepted by patients and did not interfere with the clinical routine. About 79% of eligible patients (72/91) completed the pre- and post-PIES intervention assessments. Patients in the PIES groups compared with those in the control condition were significantly more likely to report higher levels of confidence in their treatment choices, higher levels of helpfulness of the information they received in making a treatment decision, and that the information they received was emotionally reassuring. Patients in the PIES groups compared with those in the control condition were significantly less likely to need more information about treatment options, were less anxious about their treatment choices, and thought the information they received was clear (P < .05). Tailoring PIES information to information-seeking style was not related to decision-making variables. Conclusions: This pilot study confirms that the implementation of PIES within a clinical practice is feasible and acceptable to patients with a recent diagnosis of prostate cancer. PIES improved key decision-making process variables and reduced the emotional impact of a difficult medical decision. SN - 1438-8871 UR - //www.mybigtv.com/2012/1/e6/ UR - https://doi.org/10.2196/jmir.1891 UR - http://www.ncbi.nlm.nih.gov/pubmed/22246148 DO - 10.2196/jmir.1891 ID - info:doi/10.2196/jmir.1891 ER -