TY - JOUR AU - Townsend, Anne AU - Amarsi, Zubin AU - Backman, Catherine L AU - Cox, Susan M AU - Li, Linda C PY - 2011 DA - 2011/10/13 TI -招募期间志愿者与卫生研究人员之间的沟通和知情同意:电子邮件互动的定性内容分析JO - J医学互联网Res SP - e84 VL - 13 IS - 4千瓦-电子邮件KW -招聘KW -知情同意KW -志愿者研究人员互动KW -类风湿关节炎KW -定性研究KW -志愿动机KW -寻求帮助KW -自我管理AB -背景:虽然互联网在研究领域的使用越来越普遍，但在招募和早期志愿者-研究人员互动过程中，日常电子邮件通信的作用却鲜为人知。为了深入了解志愿者的立场，我们分析了早期类风湿关节炎定性访谈研究中的电子邮件通信。目的:本研究的目的是(1)了解自愿参加关于早期类风湿关节炎经历的访谈研究的个人的观点和动机，以及(2)调查电子邮件在招募过程中志愿者与研究人员互动中的作用。方法:在2007年12月至2008年12月期间，我们通过风湿病学家和家庭医生办公室、关节炎网站和加拿大关节炎研究中心招募了38名早期类风湿关节炎患者进行(面对面)定性访谈研究。我们邀请感兴趣的个人通过电子邮件或电话与我们联系。在这篇论文中，我们报告了29名志愿者中12名使用电子邮件作为主要通信方式的电子邮件通信。结果:电子邮件提供了研究志愿者的视角。他们提供了关于早期类风湿关节炎招募和知情同意的前瞻性证据。 First, some individuals anticipated that participating would have mutual benefits, for themselves and the research, suggesting a reciprocal quality to volunteering. Second, volunteering for the study was strongly motivated by a need to access health services and was both a help-seeking and self-managing strategy. Third, volunteers expressed ambivalence around participation, such as how far participating would benefit them, versus more general benefits for research. Fourth, practical difficulties of negotiating symptom impact, medical appointments, and research tasks were revealed. We also reflect on how emails documented volunteer–researcher interactions, illustrating typically undocumented researcher work during recruitment. Conclusions: Emails can be key forms of data. They provide richly contextual prospective records of an underresearched dimension of the research process: routine volunteer–researcher interactions during recruitment. Emails record the context of volunteering, and the motivations and priorities of volunteers. They also highlight the “invisible work” of research workers during what are typically considered to be standard administrative tasks. Further research is needed to fully understand the role of routine emails, what they may reveal about volunteers’ decisions to participate, and their implications for research relationships—for example, whether they have the potential to foster rapport, trust, and understanding between volunteer and researcher, and ultimately shift the power dynamic of the volunteer–researcher relationship. SN - 1438-8871 UR - //www.mybigtv.com/2011/4/e84/ UR - https://doi.org/10.2196/jmir.1752 UR - http://www.ncbi.nlm.nih.gov/pubmed/21997713 DO - 10.2196/jmir.1752 ID - info:doi/10.2196/jmir.1752 ER -