TY -非盟的林Chiou-Fen AU - Lu, Meei-Shiow AU - Chung, Chun-Chih AU -杨,Che-Ming PY - 2010 DA - 2010/10/18 TI -建立一个道德准则基因测试通过公民共识通过互联网在台湾乔- J地中海互联网Res SP - e47六世- 12 - 4 KW -伦理KW -基因检测KW -互联网KW——公众参与KW -公众参与KW -参与医学AB -背景:随着遗传学的飞速发展，基因检测的应用日益普及。测试结果对接受测试的个人及其家庭产生了巨大的影响。基因检测的伦理、法律和社会影响(ELSI)不容忽视。互联网是公众参与的潜在工具。摘要目的:本研究旨在透过网路，透过公民参与共识的方式，建立台湾基因检测的伦理准则。方法:采用互联网应用程序修改的公民共识会议和德尔菲技术进行研究。公民共识会议是一种公众参与机制。基因检测的伦理准则草案是由一个10人的专家小组撰写的。德尔菲技术应用于通过互联网招募的公民小组，直到达成共识。 Our research population was restricted to people who had Internet access. Results: Included in the citizen panel were 100 individuals. A total of 3 individuals dropped out of the process. The citizen panel was exposed to the issues through Internet learning and sharing. In all, 3 rounds of anonymous questionnaires were administered before a consensus was reached in terms of importance and feasibility. The result was ethical guidelines composed of 4 categories and 25 items. The 4 categories encompassed decision making (6 items), management of tissue samples (5 items), release of results (8 items), and information flow (6 items). On a scale of 1 to 10, the average (SD) importance score for the decision-making category was 9.41 (SD 0.58); for the management of tissue samples category, the average score was 9.62 (SD 0.49); for the release of results category, the average score was 9.34 (SD= 0.59); and for the information flow category, the average score was 9.6 (SD = 0.43). Exploratory analyses indicated that participants with higher education tended to attribute more importance to these guidelines. Conclusions: The resulting recommended ethical guidelines had 4 categories and 25 items. We hope through the implementation of these guidelines that mutual trust can be established between health care profession and the general public with respect to genetic tests. SN - 1438-8871 UR - //www.mybigtv.com/2010/4/e47/ UR - https://doi.org/10.2196/jmir.1467 UR - http://www.ncbi.nlm.nih.gov/pubmed/20965872 DO - 10.2196/jmir.1467 ID - info:doi/10.2196/jmir.1467 ER -