%0期刊文章%@ 1438- 8871% I JMIR出版物%V 24卡塔尔世界杯8强波胆分析% N 8% P e40181% T帕金森患者的自我管理干预措施:范围综述%A Milne-Ives,Madison %A Carroll,Camille %A Meinert,Edward %+普利茅斯大学健康技术中心，6 Kirkby Place, 2室，普利茅斯，PL4 6DN，英国，44 01752600600,edward.meinert@plymouth.ac.uk %K帕金森病%K自我管理%K自我护理%K家庭护理%K自我效能%K生活质量%K体征和症状%K健康行为%D 2022 %7 5.8.2022 %9综述%J J医学互联网Res %G英语%X背景:帕金森病会给患者、他们的家人和护理人员以及卫生保健系统带来巨大的痛苦和成本。为了减轻家庭和卫生保健系统的这些负担，需要更好地支持患者自我管理。为了实现这一点，需要对自我管理文献的当前状态进行概述，以确定正在做什么，它的工作效果如何，以及可能遗漏了什么。目的:本综述的目的是概述目前帕金森病患者自我管理干预的研究机构，并确定任何知识差距。方法:采用PRISMA-ScR(系统评价首选报告项目和范围评价的元分析扩展)和人群、干预、比较器、结果和研究类型框架来构建评价的方法学。由于时间和资源的限制，1名审稿人系统检索了4个数据库(PubMed、Ovid、Scopus和Web of Science)，检索了英文出版的帕金森病自我管理干预措施的评价。使用EndNote X9引文管理软件筛选文献，手动审查标题和摘要，并根据资格标准选择纳入的研究。数据被提取成预先建立的形式，并在描述性分析中合成。 Results: There was variation among the studies on study design, sample size, intervention type, and outcomes measured. The randomized controlled trials had the strongest evidence of effectiveness: 5 out of 8 randomized controlled trials found a significant difference between groups favoring the intervention on their primary outcome, and the remaining 3 had significant effects on at least some of the secondary outcomes. The 2 interventions included in the review that targeted mental health outcomes both found significant changes over time, and the 3 algorithms evaluated performed well. The remaining studies examined patient perceptions, acceptability, and cost-effectiveness and found generally positive results. Conclusions: This scoping review identified a wide variety of interventions designed to support various aspects of self-management for people with Parkinson disease. The studies all generally reported positive results, and although the strength of the evidence varied, it suggests that self-management interventions are promising for improving the care and outcomes of people with Parkinson disease. However, the research tended to focus on the motor aspects of Parkinson disease, with few nonmotor or holistic interventions, and there was a lack of evaluation of cost-effectiveness. This research will be important to providing self-management interventions that meet the varied and diverse needs of people with Parkinson disease and determining which interventions are worth promoting for widespread adoption. %M 35930315 %R 10.2196/40181 %U //www.mybigtv.com/2022/8/e40181 %U https://doi.org/10.2196/40181 %U http://www.ncbi.nlm.nih.gov/pubmed/35930315