期刊文章%@ 1438-8871 %I JMIR Publicatio卡塔尔世界杯8强波胆分析ns %V 23 %N 12 %P 27886 %T基于web的淋巴瘤患者报告结果的个体患者返回:随机对照试验%A Oerlemans,Simone %A Arts,Lindy Paulina Johanna %A Kieffer,Jacobien M %A Prins,Judith %A Hoogendoorn,Mels %A van der Poel,Marjolein %A Koster,Ad %A Lensen,Chantal %A Stevens,Wendy Bernadina Catharina %A Issa,Djamila %A Pruijt,Johannes F M %A Oosterveld,Margriet %A van der Griend,René %A Nijziel,Marten %A Tick,Lidwine %A Posthuma,Eduardus F M %A van de Poll-Franse,Lonneke V %+荷兰综合癌症组织研究与发展部门，Godebaldkwartier 419, 3511 DT，乌得勒支，荷兰，31 088 234 6000,s.oerlemans@iknl.nl %K淋巴瘤%K患者报告结果%K个人结果返回%K随机对照试验%K自我管理%D 2021 %7 14.12.2021 %9原创论文%J J医学互联网Res %G英语%X背景:随着患者对获取其结果的需求日益增长，患者参与健康的文化已经发生了转变。目的:淋巴瘤干预(LIVE)试验旨在检验个体患者报告结果(PRO)结果的返回和基于网络的自我管理干预对基于人群设置的心理困扰、自我管理、信息满意度和医疗保健使用的影响。方法:PRO结果的返回包括与年龄和性别匹配的同龄人的比较，并被纳入患者报告的初始治疗后的结果和生存率的长期评估登记。自我管理干预是对乳腺癌幸存者的全自动循证干预的改编。完成基于网络的问卷调查的淋巴瘤患者被平均随机分为常规护理、PRO结果返回和PRO结果返回加上自我管理干预。患者在诊断后9 ~ 18个月完成问卷调查(T0;n=227)， 4个月(T1;n=190)， 12个月(T2; n=170), and 24 months (T3; n=98). Results: Of all invited patients, 51.1% (456/892) responded and web-based participants (n=227) were randomly assigned to care as usual (n=76), return of PRO results (n=74), or return of PRO results and access to Living with lymphoma (n=77). Return of PRO results was viewed by 76.7% (115/150) of those with access. No statistically significant differences were observed for psychological distress, self-management, satisfaction with information provision, and health care use between patients who received PRO results and those who did not (P>.05). Use of the self-management intervention was low (2/76, 3%), and an effect could therefore not be determined. Conclusions: Return of individual PRO results seems to meet patients’ wishes but had no beneficial effects on patient outcome. No negative effects were found when individual PRO results were disclosed, and the return of individual PRO results can therefore be safely implemented in daily clinical practice. Trial Registration: Netherlands Trial Register NTR5953; https://www.trialregister.nl/trial/5790 International Registered Report Identifier (IRRID): RR2-10.1186/s13063-017-1943-2 %M 34904948 %R 10.2196/27886 %U //www.mybigtv.com/2021/12/e27886 %U https://doi.org/10.2196/27886 %U http://www.ncbi.nlm.nih.gov/pubmed/34904948