%0期刊文章%@ 1438- 8871% I JMIR出版物%V 21卡塔尔世界杯8强波胆分析% N 8% P e14374% T精神病患者家庭护理人员的多成分电子健康干预:联合制作的设计和建造研究%A Sin,Jacqueline %A Henderson,Claire %A Woodham,Luke %A Sesé Hernández,Aurora %A Gillard,Steve %+人口健康研究所，伦敦大学圣乔治，克朗默露台，伦敦，SW17 0RE，英国，44 07817027036，jasin@sgul.ac.uk %K电子健康%K家庭护理人员%K精神病%K精神健康%K参与性研究%K公众和患者参与%K联合制作%D 2019 %7 06.08.2019 %9原始论文%J J医学互联网Res %G英文%X背景:精神病，包括精神分裂症，是影响全球1%人口的最常见的严重精神疾病。很多人会为精神病患者的亲属提供长期的支持和照顾。尽管心理教育干预，特别是通过面对面小组形式提供的心理教育干预，在改善护理体验、福祉和健康结果方面有既定的证据基础，但大规模实施和获取仍然有限。人们要求通过互联网提供这种服务，以获得更大的灵活性和更广泛的使用权。目的:本研究旨在将公众、患者和护理人员的参与性研究方法整合到eHealth(电子健康)干预设计和构建过程中，以提高产品的可用性和可接受性。方法:我们采用了一种结构化的电子健康干预构建方法，以包括涉及关键利益相关者和最终用户的参与性研究活动，以共同设计和共同制作我们的干预。由公众参与成员组成的专家咨询小组(EAG)使用敏捷构建过程领导了形式化设计和构建工作。通过焦点小组会议，独立于研究的护理人员就干预原型的演进草案进行了咨询。 These results were fed back into the intervention build work continuously to ensure end users’ input inform every stage of the process. Results: An EAG comprising individuals with lived experience of psychosis, carers, health care professionals, researchers, voluntary organization workers, and eLearning experts (n=14) was established. A total of 4 coproduction workshops were held over 1 year during which the alpha and beta prototypes were designed and built through the participatory research work. Alongside this, 2 rounds of focus group study with carers (n=24, in 4 groups) were conducted to seek consultation on end users’ views and ideas to optimize the intervention design and usability. Finally, the EAG carried out a Web-based walk-through exercise on the intervention prototype and further refined it to make it ready for an online usability test. The final product contains multiple sections providing information on psychosis and related caregiving topics and interactive discussion forums with experts and peers for psychosocial support. It provides psychoeducation and psychosocial support for carers through the internet, promoting flexible access and individualized choices of information and support. Conclusions: The participatory research work led to the coproduction of a eHealth intervention called COPe-support (Carers fOr People with Psychosis e-support). We believe the study methodology, results, and output have optimized the intervention design and usability, fitting the end users’ needs and usage pattern. COPe-support is currently being tested for its effectiveness in promoting carers’ health outcome through an online randomized controlled trial. Trial Registration: ISRCTN Registry ISRCTN89563420; http://www.isrctn.com/ISRCTN89563420 %M 31389333 %R 10.2196/14374 %U //www.mybigtv.com/2019/8/e14374/ %U https://doi.org/10.2196/14374 %U http://www.ncbi.nlm.nih.gov/pubmed/31389333