期刊文章%@ 1438-8871 %I JMIR出版物%V 21 %N卡塔尔世界杯8强波胆分析 8 %P e 1322 %T从信息寻求者到创新者:描述第二代e -患者经历的定性分析%A Scott Duncan,Therese %A Riggare,Sara %A Koch,Sabine %A Sharp,Lena %A Hägglund,Maria %+卡罗林斯卡学院学习、信息学、管理和伦理学系健康信息中心，Tomtebodavägen 18 A，瑞典斯德哥尔摩，17177,46 73 512 40 63，therese.scott.duncan@ki.se %K消费者健康信息学%K电子健康%K定性研究%K自我护理%K动机%D 2019 %7 15.08.2019 %9原创论文%J J医学互联网Res %G英文%X背景:当前的医疗保健系统很少设计来满足慢性病患者的需求。然而，一些病人和非正式护理人员并没有等待卫生保健系统重新设计自己。这些人有时被称为电子病人。第一代电子病人使用互联网来寻找信息和与同伴交流。与第一代相比，第二代电子患者收集自己的健康数据，似乎更具创新性。目的:本研究的目的是通过探索第二代电子患者在自我护理和医疗保健中的积极参与来描述他们。方法:对10例慢性疾病患者和5名非正式护理人员进行半结构化访谈。他们都是通过网络广告招募的。 Data were analyzed according to the framework analysis approach, using the 3 concepts of the self-determination theory—autonomy, relatedness, and competence—at the outset. Results: Study participants were actively engaged in influencing their self-care and the health care system to improve their own health, as well as the health of others. This occurred at different levels, such as using their own experience when giving presentations and lectures to health care professionals and medical students, working as professional peers in clinical settings, performing self-tracking, contributing with innovations, and being active on social media. When interaction with health care providers was perceived as being insufficient, the participants sought support through their peers, which showed strong relatedness. Competence increased through the use of technology and learning experiences with peers. Their autonomy was important but was sometimes described as involuntary and to give up was not an option for them. Conclusions: Like the first generation of e-patients, the participants frequently searched for Web-based information. However, the second generation of e-patients also produce their own health data, which they learn from and share. They also engage in the innovation of digital tools to meet health-related needs. Utilizing technological developments comes naturally to the second generation of e-patients, even if the health care system is not prepared to support them under these new circumstances. %M 31418421 %R 10.2196/13022 %U //www.mybigtv.com/2019/8/e13022/ %U https://doi.org/10.2196/13022 %U http://www.ncbi.nlm.nih.gov/pubmed/31418421