I JMIR出版物V 21% N 6% P e14165% T炎症性肠卡塔尔世界杯8强波胆分析病(TELE-IBD)患者的远程医疗临床试验:参与者认知的定性评估%A Quinn,Charlene Connolly %A Chard,Sarah %A Roth,Erin G %A Eckert,J Kevin %A Russman,Katharine M %A Cross,Raymond K %+马里兰大学医学院流行病学和公共卫生系，660 W Redwood St, HH 215，马里兰州巴尔的摩市，21201，美国，1 410 706 2406，cquinn@som.umaryland.edu %K炎症性肠病%K克罗恩病%K溃疡性结肠炎%K定性研究%K远程医疗%D 2019 %7 03.06.2019 %9原始论文%J J医学互联网Res %G英文%X背景:炎症性肠病(IBD)，包括克罗恩病和溃疡性结肠炎，在美国影响了100 - 300万人。远程医疗在IBD方面已显示出前景。本研究为IBD患者的远程医疗(TELE-IBD)，目的是在接受远程医疗与标准护理的IBD患者的1年随机临床试验中比较疾病活动性和生活质量(QoL)。治疗组在疾病活动性和生活质量方面均有改善，但两组间无显著差异。对基于文本的干预的研究依从性低于既定目标的80%。目的:为了了解远程监测的依从性，本定性评估的目标是获得TELE-IBD试验参与者的看法，包括他们对未来监测的建议。方法:在本研究中，过去2年在3个三级转诊中心就诊的IBD症状加重的患者有资格随机分为每隔一周、每周或标准护理的短信远程监测组。参与者(n=348)被平均纳入治疗组，259人(74.4%)完成了研究。 For this study, a purposive sample of adherent (N=15) and nonadherent (N=14) patients was drawn from the TELE-IBD trial population. Adherence was defined as the completion of 80% (278/348) or more of the weekly or every other week self-assessments. Semistructured interviews conducted by phone surveyed (1) the strengths and benefits of TELE-IBD, (2) challenges associated with using TELE-IBD, and (3) how to improve the TELE-IBD intervention. Interviews were recorded, professionally transcribed, and coded based on a priori concepts and emergent themes with the aid of ATLAS.ti, version.7 qualitative data analysis software. Results: Participants' discussions centered on 3 elements of the intervention: (1) self-assessment questions, (2) action plans, and (3) educational messages. Participants also commented on text-based platform, depression and adherence, TELE-IBD system in place of office visit, and their recommendations for future TELE-IBD systems. Adherent and nonadherent participants prefer a flexible system that is personalized, including targeted education messages, and they perceive the intervention as effective in facilitating IBD self-management. Conclusions: Participants identified clear benefits to the TELE-IBD system, including obtaining a better understanding of the disease process, monitoring their symptoms, and feeling connected to their health care provider. Participants’ perceptions obtained in this qualitative study will assist in improving the TELE-IBD system to be more responsive to patients with IBD. %M 31162128 %R 10.2196/14165 %U //www.mybigtv.com/2019/6/e14165/ %U https://doi.org/10.2196/14165 %U http://www.ncbi.nlm.nih.gov/pubmed/31162128