%0期刊文章%@ 1438- 8871% I JMIR出版物%V 20卡塔尔世界杯8强波胆分析% N 12% P e297% T通过社交媒体通过护理人员参与识别巨结肠疾病的信息需求:优先级研究和文献综述A Wittmeier,Kristy DM %A Hobbs-Murison,Kendall %A Holland,Cindy %A Crawford,Elizabeth %A Loewen,Hal %A Morris,Melanie %A Lum Min,Suyin %A abu - setta,Ahmed %A Keijzer,Richard +外科，Max Rady医学院，Rady健康科学学院，马尼托巴大学，Winnipeg Sherbrook街AE402-840, MB, R3A 1S1，加拿大，1 2047871246，richardkeijzer@gmail.com %K巨结肠疾病%K护理人员%K社交媒体%K研究%K外科医生%K调查和问卷%D 2018 %7 21.12.2018 %9原始论文%J J医学互联网Res %G英语%X背景:患者和公众参与健康研究对产生相关和有影响力的结果很重要。目的:本文旨在通过与家长发起的社交媒体活动合作，优先考虑和总结先天性巨结肠病(HD)患儿护理人员和儿科外科医生的相关信息需求。方法:我们对两个利益相关者群体进行了基于网络的调查，以确定信息需求。护理人员调查是通过全球网络社区进行的，外科医生调查分发给加拿大儿科外科医生协会(CAPS)的成员。我们进行了文献综述，以确定优先主题的证据。结果:我们的研究结果显示，54.9%(89/162)的个体完成了护理人员调查，23.8%(52/218)的儿科外科医生完成了通过CAPS分发的调查。只有20%(18/89)的护理人员表示对当前hd相关资源非常满意或满意。最终优先的信息需求列表包括肠道管理、营养和生长、感染、肛周刺激、胃肠疼痛、手术诊断和手术并发症。 In total, 87 studies were included in the literature review, which included the following: 8 reviews, 2 randomized controlled trials, 74 cohort studies, and 3 practice guidelines. Two priority issues identified by caregivers had only a single study that met the inclusion criteria, whereas 1 topic had none. Conclusions: With caregiver and surgeon input, we identified 7 information priority areas related to HD. A review of the literature on the priorities found little evidence to support the development of high-quality guidelines. More research is necessary to meet the information needs related to HD as identified by stakeholders. %M 30578208 %R 10.2196/jmir.9701 %U //www.mybigtv.com/2018/12/e297/ %U https://doi.org/10.2196/jmir.9701 %U http://www.ncbi.nlm.nih.gov/pubmed/30578208