%0期刊文章@ 1438- 8871% I JMIR出版物%V 19%卡塔尔世界杯8强波胆分析 N 10% P e334% T介绍患者经历的网站对结直肠癌患者自我效能感和患者能力的影响:基于web的随机对照试验%A Giesler,Jürgen M %A Keller,Bettina %A Repke,Tim %A Leonhart,Rainer %A Weis,Joachim %A Muckelbauer,Rebecca %A Rieckmann,Nina %A Müller-Nordhorn,Jacqueline %A Lucius-Hoene,Gabriele %A Holmberg,Christine %+公共卫生研究所，Charité - Universitätsmedizin柏林，Freie公司成员Universität柏林，Humboldt-Universität zu Berlin，和柏林卫生研究所，Seestr 73 - Haus 10，柏林，13347，德国，49 30450529192，christine.holmberg@charite.de %K自我效能%K结直肠癌%K患者能力%K叙事信息%K网络体验信息%D 2017 %7 13.10.2017 %9原创论文%J J医学互联网Res %G英文%X背景:患者经常寻求其他患者的疾病经历。通过博客或患者发起的在线讨论组，互联网提供了广泛的机会来分享和了解其他人的健康和疾病经历。还存在一系列医疗信息设备，其中包括体验式患者信息。然而，人们对这种经验信息的使用存在严重担忧，因为其他人的叙述可能是强大而普遍的工具，可能阻碍知情决策的制定。国际研究网络DIPEx(个体患者经验数据库)旨在提供基于科学的关于人们健康和疾病经验的在线信息，以满足患者对经验信息的需求，同时确保所呈现的信息包括各种可能的经验。目的:评价德国DIPEx网站krankheitserfahrungen.de的结直肠癌模块对应对癌症的自我效能和患者能力的影响。方法:2015年，采用两组受试者间设计和重复测量进行了一项基于网络的随机对照试验。研究样本包括过去3年内被诊断为结直肠癌或有转移或复发疾病的个体。 Outcome measures included self-efficacy for coping with cancer and patient competence. Participants were randomly assigned to either an intervention group that had immediate access to the colorectal cancer module for 2 weeks or to a waiting list control group. Outcome criteria were measured at baseline before randomization and at 2 weeks and 6 weeks Results: The study randomized 212 persons. On average, participants were 54 (SD 11.1) years old, 58.8% (124/211) were female, and 73.6% (156/212) had read or heard stories of other patients online before entering the study, thus excluding any influence of the colorectal cancer module on krankheitserfahrungen.de. No intervention effects were found at 2 and 6 weeks after baseline. Conclusions: The results of this study do not support the hypothesis that the website studied may increase self-efficacy for coping with cancer or patient competencies such as self-regulation or managing emotional distress. Possible explanations may involve characteristics of the website itself, its use by participants, or methodological reasons. Future studies aimed at evaluating potential effects of websites providing patient experiences on the basis of methodological principles such as those of DIPEx might profit from extending the range of outcome measures, from including additional measures of website usage behavior and users’ motivation, and from expanding concepts, such as patient competency to include items that more directly reflect patients’ perceived effects of using such a website. Trial Registration: Clinicaltrials.gov NCT02157454; https://clinicaltrials.gov/ct2/show/NCT02157454 (Archived by WebCite at http://www.webcitation.org/6syrvwXxi) %M 29030329 %R 10.2196/jmir.7639 %U //www.mybigtv.com/2017/10/e334/ %U https://doi.org/10.2196/jmir.7639 %U http://www.ncbi.nlm.nih.gov/pubmed/29030329