%0期刊文章@ 1438- 8871% I JMIR Publicat卡塔尔世界杯8强波胆分析ions Inc. V 18% N 1% P e 12% T众包诊断未确诊疾病患者:迈耶,阿什利·n·d·朗赫斯特,克里斯托弗·A·辛格,哈迪普+休斯顿退伍军人事务质量、有效性和安全创新中心,迈克尔·e·德贝克退伍军人事务医疗中心,VA HSR&D创新中心(152),2002 Holcombe大道,德克萨斯州休斯顿,77030,美国,1713 794 8601,hardeeps@bcm.edu %K众包%K诊断%K诊断错误%K患者安全%K万维网%D 2016 %7 14.01.2016 %9原始论文%J J医学互联网Res %G英文%X背景:尽管看了多名医生,许多患者仍未确诊。一个名为CrowdMed的新在线项目旨在利用“大众的智慧”,让患者有机会提交他们的病例,并与病例解决人员互动,以获得诊断的可能性。目的:描述CrowdMed并提供其影响的独立评估。方法:患者将他们的病例在线提交到CrowdMed,病例解决人员注册帮助诊断患者。病例解决者试图解决患者的诊断困境,并经常与患者进行在线互动讨论,包括交换额外的诊断细节。最后,患者会收到详细的报告,其中包括与医生讨论的诊断建议,并填写关于结果的调查。我们独立分析了2013年5月至2015年4月收集的病例数据,以确定患者和病例解决者的特征和病例结局。结果:研究期间共完成397例。 These patients previously visited a median of 5 physicians, incurred a median of US $10,000 in medical expenses, spent a median of 50 hours researching their illnesses online, and had symptoms for a median of 2.6 years. During this period, 357 active case solvers participated, of which 37.9% (132/348) were male and 58.3% (208/357) worked or studied in the medical industry. About half (50.9%, 202/397) of patients were likely to recommend CrowdMed to a friend, 59.6% (233/391) reported that the process gave insights that led them closer to the correct diagnoses, 57% (52/92) reported estimated decreases in medical expenses, and 38% (29/77) reported estimated improvement in school or work productivity. Conclusions: Some patients with undiagnosed illnesses reported receiving helpful guidance from crowdsourcing their diagnoses during their difficult diagnostic journeys. However, further development and use of crowdsourcing methods to facilitate diagnosis requires long-term evaluation as well as validation to account for patients’ ultimate correct diagnoses. %M 26769236 %R 10.2196/jmir.4887 %U //www.mybigtv.com/2016/1/e12/ %U https://doi.org/10.2196/jmir.4887 %U http://www.ncbi.nlm.nih.gov/pubmed/26769236
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