杂志文章@ 14388871% I JMIR出版公司V 16% N 卡塔尔世界杯8强波胆分析3% P 70% T通过基于web的干预和医疗保健专业支持支持湿疹儿童家庭的自我护理:试点随机对照试验%A Santer,Miriam %A Muller,Ingrid %A Yardley,Lucy %A Burgess,Hana %A Selinger,Hannah %A Stuart,Beth L %A Little,Paul %+初级保健和人口科学,南安普顿大学,Aldermoor健康中心,Aldermoor Close, SO16 5ST,英国,44 2380241019,m.santer@soton.ac.uk %K儿童%K初级护理%K随机对照试验%K湿疹%K互联网%K自我护理%D 2014 %7 04.03.2014 %9原始论文%J J医学互联网Res %G英文%X背景:儿童湿疹,或儿童特应性皮炎,通过睡眠障碍和瘙痒对儿童及其家人造成重大困扰。治疗失败的主要原因是不使用规定的治疗方法。目的:本研究的目的是开发和测试一种基于网络的干预措施,以支持湿疹儿童的家庭,并探讨是否需要卫生保健专业人员(HCP)的支持,以使参与者参与干预。方法:我们遵循了prior - proceed模型:定期使用润肤剂是我们寻求促进的目标行为,我们确定了潜在的技术来影响这一行为。使用LifeGuide软件编写干预网站。湿疹儿童的护理人员通过初级护理邮件被邀请,并随机分为3组:(1)仅通过网站,(2)网站+ HCP支持,或(3)常规护理。以患者为导向的湿疹测量(POEM)评分在基线和12周时通过护理人员报告在线测量。对13名HCPs(主要是实习护士)和26名参与者进行了定性访谈,以探讨他们参与研究的经历。 Results: A total of 143 carers were recruited through 31 practices. We found a decrease of ≥2 in follow-up compared with baseline POEM score in 23 of 42 (55%) participants in the website only group, 16 of 49 (33%) in the usual care group, and 18 of 47 (38%) in the website plus HCP group. Website use data showed that 75 of 93 (81%) participants allocated to the website groups completed the core modules, but less than half used other key components (videos: 35%; regular text reminders: 39%). There were no consistent differences in website use between the website only or the website plus HCP groups. Qualitative feedback showed that most HCPs had initial concerns about providing support for eczema self-care because this was not a condition that they felt expert in. However, HCPs reported productive consultations and that they found it helpful to use the website in consultations, while observing that some participants seemed to need more support than others. Qualitative interviews with participants suggested that HCP support was valued highly only by a minority, generally those who were less confident in their management of eczema or less confident using the Internet. Conclusions: Our pilot trial demonstrated the potential for greater improvements in POEM scores in both website intervention groups and that a full-scale trial is feasible. Such a trial would quantify the effectiveness and cost-effectiveness of this intervention to determine whether it should be widely promoted to families of children with newly diagnosed eczema. In this study population, HCP support was not strongly valued by participants and did not lead to better outcomes or website use than use of the Web-based intervention alone. Trial Registration: International Standard Randomized Controlled Trial Number (ISRCTN): 98560867; http://www.controlled-trials.com/ISRCTN98560867 (Archived by WebCite at http://www.webcitation.org/6NcxvMtgN). %M 24594972 %R 10.2196/jmir.3035 %U //www.mybigtv.com/2014/3/e70/ %U https://doi.org/10.2196/jmir.3035 %U http://www.ncbi.nlm.nih.gov/pubmed/24594972
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