%0期刊文章@ 1438- 8871% I JMIR出版公司V 16%卡塔尔世界杯8强波胆分析 N 11% P e261% T俄罗斯社交网络服务上的一个艾滋病否认主义者在线社区:与新人互动的模式和说服修辞策略%A Meylakhs,Peter %A Rykov,Yuri %A Koltsova,Olessia %A Koltsov,Sergey %+国家研究大学高等经济学院互联网研究实验室,Rimskogo-Korsakova pr 47室321-322,圣彼得堡,190068,俄罗斯联邦,7 812 677 94 52,peter.meylakhs@gmail.com %K消费者健康信息%K互联网%K在线社区%K艾滋病否认者%K互联网健康信息质量%K网络学%K定性研究%D 2014 %7 17.11.2014 %9原创论文%J J医学互联网Res %G英文%X背景:社交媒体的兴起被证明是获得性免疫缺陷综合征(艾滋病)否认者运动(以在线社区的形式)扩张的肥沃土壤。虽然有大量文献致力于反驳艾滋病否认者的观点,但缺乏研究探索艾滋病否认者与外部环境互动的在线社区。目的:我们探索了三个研究领域:(1)新来者加入艾滋病否认主义者社区的原因,(2)社区与新来者的互动模式,以及(3)否认主义者用于说服他们的观点的真实性的修辞策略。方法:我们研究了俄罗斯最受欢迎的社交网络服务之一上最大的艾滋病否认主义者社区。我们使用网络图作为收集数据进行定性分析的方法,并对社区进行了9个月的观察(每周至少2-3次)。在做网络摄影时,我们定期下载社区讨论。我们总共下载了4821篇文章和评论进行分析。数据分析采用扎根理论方法。 Results: Most users came to the community for the following reasons: their stories did not fit the unitary picture of AIDS disease progression translated by popular medical discourse, health problems, concern about HIV-positive tests, and desire to dissuade community members from false AIDS beliefs. On the basis of strength in AIDS-denialist beliefs, we constructed a typology of the newcomers consisting of three ideal-typical groups: (1) convinced: those who already had become denialists before coming to the group, (2) doubters: those who were undecided about the truth of either human immunodeficiency virus (HIV) science theory or AIDS-denialist theory, and (3) orthodox: those who openly held HIV science views. Reception of a newcomer mainly depended on the newcomer’s belief status. Reception was very warm for the convinced, cold or slightly hostile for the doubters, and extremely hostile or derisive for the orthodox. We identified seven main rhetorical strategies of persuasion used by the denialists on the “undecided”. Conclusions: Contrary to the widespread public health depiction of AIDS denialists as totally irrational, our study suggests that some of those who become AIDS denialists have sufficiently reasonable grounds to suspect that “something is wrong” with scientific theory, because their personal experience contradicts the unitary picture of AIDS disease progression. Odd and inexplicable practices of some AIDS centers only fuel these people’s suspicions. We can conclude that public health practitioners’ practices may play a role in generating AIDS-denialist sentiments. In interactions with the newcomers, the experienced community members highlighted the importance of personal autonomy and freedom of choice in decision making consistent with the consumerist ideology of health care. The study findings suggest that health care workers should change a one-size-fits-all mode of counseling for a more complex and patient-tailored approach, allowing for diversity of disease progression scenarios and scientific uncertainty. %R 10.2196/jmir.3338 %U //www.mybigtv.com/2014/11/e261/ %U https://doi.org/10.2196/jmir.3338
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