杂志文章@ 14388871 % JMIR出版公司V 15% N 9卡塔尔世界杯8强波胆分析% P e 188% T成人哮喘患者基于互联网的自我管理支持的长期结果:随机对照试验%A van Gaalen,Johanna L %A Beerthuizen,Thijs %A van der Meer,Victor %A van Reisen,Patricia %A Redelijkheid,Geertje W %A snock - stroband,Jiska B %A Sont,Jacob K %A， +莱顿大学医学中心，医疗决策系，Albinusdreef 2, J-10-86，莱顿，2333 ZA，荷兰，31 715264578，j.k.sont@lumc.nl %K哮喘%K生活质量%K自我管理%K长期%K电子健康%K互联网%K远程医疗%D 2013 %7 2013年12月9日%9原始论文%J J医学互联网Res %G英语%X背景:长期哮喘管理达不到国际指南规定的目标。互联网被认为是一种有吸引力的媒介，以支持哮喘的指导自我管理。最近，在一项随访1年的多中心、实用的随机对照平行试验中，患者被分配了基于互联网的自我管理(IBSM)支持(互联网组[IG])或单独的常规护理(UC)。IBSM支持在随访12个月后自动终止。在这项研究中，与UC相比，IBSM支持已被证明可以改善哮喘相关的生活质量、哮喘控制、肺功能和无症状天数。IBSM支持基于有效自我管理的已知关键组成部分，包括每周哮喘控制监测和治疗建议、在线和小组教育，以及与呼吸科护士的交流(在线和离线)。目的:本研究的目的是评估与单纯UC相比，为患者提供1年IBSM支持的长期效果。方法:来自37个全科和1个学术门诊部的200名被医生诊断为哮喘的成年人(在过去一年中服用了3个月或以上的吸入糖皮质激素)在研究结束后的1.5年被书面邀请进行额外随访。 The Asthma Control Questionnaire (ACQ) and the Asthma Quality of Life Questionnaire (AQLQ) were completed by 107 participants (60 UC participants and 47 IG participants). A minimal clinical important difference in both questionnaires is 0.5 on a 7-point scale. Results: At 30 months after baseline, a sustained and significant difference in terms of asthma-related quality of life of 0.29 (95% CI 0.01-0.57) and asthma control of -0.33 (95% CI -0.61 to -0.05) was found in favor of the IBSM group. No such differences were found for inhaled corticosteroid dosage or for lung function, measured as forced expiratory volume in 1 second. Conclusions: Improvements in asthma-related quality of life and asthma control were sustained in patients who received IBSM support for 1 year, even up to 1.5 years after terminating support. Future research should be focused on implementation of IBSM on a wider scale within routine asthma care. Trial Registration: International Standard Randomized Controlled Trial Number (ISRCTN): 79864465; http://www.controlled-trials.com/ISRCTN79864465 (Archived by WebCite at http://www.webcitation.org/6J4VHhPk4). %M 24028826 %R 10.2196/jmir.2640 %U //www.mybigtv.com/2013/9/e188/ %U https://doi.org/10.2196/jmir.2640 %U http://www.ncbi.nlm.nih.gov/pubmed/24028826