[0]期刊文章[j] Gunther Eysenbach %V 13 %N 3 %P e62 %T管理健康的个人方面:患者的专业知识与临床医生的专业知识有何不同%A Hartzler,Andrea %A Pratt,Wanda %+华盛顿大学医学院生物医学与健康信息学部，美国华盛顿州西雅图市东北太平洋街1959号HSB I-264号357240室，邮编:1 206 616 0369，邮编:98195andreah@uw.edu %K健康知识%K态度%K实践%K社会支持%K社区网络%K同行群体%K消费者健康信息学%K在线社区%K患者专业知识%K个性化健康%D 2011 %7 16.08.2011 %9背景:当患者需要健康信息来管理他们的个人健康时，他们转向卫生专业人员和其他患者。然而，我们对患者之间交换的信息(即患者专业知识)与卫生专业人员提供的信息(即临床医生专业知识)的对比知之甚少。了解患者的经验专业知识与卫生专业人员的医学专业知识的对比是必要的，以便为满足患者需求的同伴支持工具的设计提供信息，特别是在通过基于互联网的社交软件进行大量无指导的建议分享日益流行的情况下。目的:我们研究的目的是提高我们对患者专业知识的理解，并为同伴支持工具的设计提供信息。我们比较了乳腺癌患者专业知识与临床医生专业知识的特点。方法:通过对互联网留言板和书籍中讨论的主题和推荐的内容进行比较分析，我们对比了患者专业知识来源与临床医生专业知识来源中共享的专业知识的主题、形式和风格。结果:患者的专业知识集中在应对日常个人健康问题的策略上，这些策略是通过对生活经验的反复试验获得的;因此，它的主题主要是个人的。 It offered a wealth of actionable advice that was frequently expressed through the narrative style of personal stories about managing responsibilities and activities associated with family, friends, work, and the home during illness. In contrast, clinician expertise was carried through a prescriptive style and focused on explicit facts and opinions that tied closely to the health care delivery system, biomedical research, and health professionals’ work. These differences were significant between sources of patient expertise and sources of clinician expertise in topic (P < .001), form (P < .001), and style (P < .001). Conclusion: Patients offer other patients substantial expertise that differs significantly from the expertise offered by health professionals. Our findings suggest that experienced patients do not necessarily serve as “amateur doctors” who offer more accessible but less comprehensive or detailed medical information. Rather, they offer valuable personal information that clinicians cannot necessarily provide. The characteristics of patient expertise and the resulting design implications that we identified will help informaticians enhance the design of peer-support tools that will help meet patients’ diverse information needs. %M 21846635 %R 10.2196/jmir.1728 %U //www.mybigtv.com/2011/3/e62/ %U https://doi.org/10.2196/jmir.1728 %U http://www.ncbi.nlm.nih.gov/pubmed/21846635