[0]期刊文章%@ 1438-8871 % 1 Gunther Eysenbach %V % 12 %N % 3 %P % 30 %T青少年特发性关节炎在线自我管理程序的可用性测试%A Stinson,Jennifer %A McGrath,Patrick %A Hodnett,Ellen %A Feldman,Brian %A Duffy,Ciaran %A Huber,Adam %A Tucker,Lori %A Hetherington,Ross %A Tse,Shirley %A Spiegel,Lynn %A Campillo,Sarah %A Gill,Navreet %A White,Meghan %+慢性疼痛项目，麻醉与疼痛医学科加拿大多伦多市大学大道555号病童医院，M5G 1X8, 1 416 813 7654 ext 4514, jennifer.stinson@sickkids.ca %K青少年特发性关节炎%K互联网%K可用性测试%K自我管理%K青少年%D 2010 %7 29.07.2010 %9原文%J J Med互联网研究%G英语%X背景:一个新的双语(英语和法语)基于互联网的自我管理项目，青少年负责:管理关节炎在线，为患有关节炎的青少年和他们的父母是在需求评估后开发的。目的:本研究探讨青少年特发性关节炎(JIA)及其父母自我管理程序的可用性(用户表现和满意度)，以完善健康门户原型。方法:采用半结构化、录音访谈和训练有素的观察者观察的定性研究设计，通过两个迭代周期来确定用户界面和干预内容领域的可用性(易用性、效率、错误和用户满意度)。有目的的英语样本(n = 11;平均年龄= 15.4，标准差[SD] 1.7)和法语(n = 8;平均年龄= 16.0,SD 1.2)患有JIA的青少年和各自的父母/照顾者之一从2个加拿大三级保健中心招募。描述性统计和简单的内容分析用于将数据组织到反映新兴可用性主题的类别中。结果:所有的参与者都可以在家里使用电脑/互联网; however, adolescents were more comfortable using the computer/Internet than their parents. Adolescents and parents provided similar as well as differing suggestions on how the website user interface could be improved in terms of its usability (navigation; presentation and control usage errors; format and layout; as well as areas for further content development). There were no major differences in usability issues between English- and French-speaking participants. Minor changes to the website user interface were made and tested in a second cycle of participants. No further usability problems were identified in the second iterative cycle of testing. Teens and parents responded positively to the appearance and theme of the website (ie, promoting self-management) and felt that it was easy to navigate, use, and understand. Participants felt that the content was appropriate and geared to meet the unique needs of adolescents with JIA and their parents as well as English- and French-speaking families. Many participants responded that the interactive features (discussion board, stories of hope, and video clips of youth with JIA) made them feel supported and “not alone” in their illness. Conclusions: We describe the usability testing of a self-management health portal designed for English- and French-speaking youth with arthritis and their parents, which uncovered several usability issues. Usability testing is a crucial step in the development of self-management health portals to ensure that the various end users (youth and parents) have the ability to access, understand, and use health-related information and services that are delivered via the Internet and that they are delivered in an efficient, effective, satisfying, and culturally competent manner. %M 20675293 %R 10.2196/jmir.1349 %U //www.mybigtv.com/2010/3/e30/ %U https://doi.org/10.2196/jmir.1349 %U http://www.ncbi.nlm.nih.gov/pubmed/20675293