@Article{信息:doi 10.2196 / / jmir.3.4。e33，作者="Deftereos, S. and Lambrinoudakis, C. and Andriopoulos, P. and Farmakis, D. and Aessopos, A."，标题="基于java的β -地中海贫血电子医疗记录软件"，期刊="J Med Internet Res"，年="2001"，月=" 12月"，日="26"，卷="3"，数="4"，页数="e33"，关键词="医疗记录系统，电脑化;电脑化病历;beta-thalassaemia;提供保健服务;背景:乙型地中海贫血病是一种遗传性疾病，在地中海、非洲和东南亚血统的人群中患病率很高。在希腊，这是一个重要的公共卫生问题。乙型地中海贫血需要持续和复杂的保健程序，如每日螯合;两周一次的输血;以及定期的心脏病学，内分泌学和肝病学评估。 Typically, different care items are offered in different, often-distant, health care units, which leads to increased patient mobility. This is especially true in rural areas. Medical records of patients suffering from beta-thalassaemia are inevitably complex and grow in size very fast. They are currently paper-based, scattered over all units involved in the care process. This hinders communication of information between health care professionals and makes processing of the medical records difficult, thus impeding medical research. Objective: Our objective is to provide an electronic means for recording, communicating, and processing all data produced in the context of the care process of patients suffering from beta-thalassaemia. Methods: We have developed - and we present in this paper - Java-based Electronic Healthcare Record (EHCR) software, called JAnaemia. JAnaemia is a general-purpose EHCR application, which can be customized for use in all medical specialties. Customization for beta-thalassaemia has been performed in collaboration with 4 Greek hospitals. To be capable of coping with patient record diversity, JAnaemia has been based on the EHCR architecture proposed in the ENV 13606:1999 standard, published by the CEN/TC251 committee. Compliance with the CEN architecture also ensures that several additional requirements are fulfilled in relation to clinical comprehensiveness; to record sharing and communication; and to ethical, medico-legal, and computational issues. Special care has been taken to provide a user-friendly, form-based interface for data entry and processing. Results: The experience gained through the use of JAnaemia in 4 Greek hospitals reveals a significant contribution towards (1) improvement of the quality of the data being recorded, since data entry is guided by appropriate forms, (2) easier cooperation between physicians, who share a common information repository, and (3) increased processing capabilities, which facilitate medical research. Conclusions: JAnaemia appears to be a useful tool, which can improve the quality of care offered to beta-thalassaemic patients in Greece. ", issn="1438-8871", doi="10.2196/jmir.3.4.e33", url="//www.mybigtv.com/2001/4/e33/", url="https://doi.org/10.2196/jmir.3.4.e33", url="http://www.ncbi.nlm.nih.gov/pubmed/11772548" }