@文章{info:doi/10.2196/27781,作者="Batchelor, Rachel和Gulshan, Sarah和Shritharan, Halpana和Williams, Elen和Henderson, Claire和Gillard, Steve和Woodham, Luke A和Cornelius, Victoria和Elkes, Jack和Sin, Jacqueline",标题="数字心理教育和同伴支持干预(COPe-support)的感知可接受性和体验:对精神病患者护理人员的访谈研究",期刊="J Med Internet Res",年="2022",月="2",日="2",卷="24",数="2",页="e27781",关键词="eHealth;家庭护理人员;定性研究;精神病;同伴支持;网络心理教育;背景:基于网络的心理健康干预措施为家庭照顾者(即支持患有精神病的亲人的亲戚和密友)提供了一种新颖、方便和自我节奏的护理方法。我们联合制作了COPe-support(精神病护理人员电子支持),通过丰富的网络学习环境和专业人员和同伴的网络支持提供心理教育干预。除了严格调查应对方案支助对护理人员福祉和心理健康结果的有效性外,还必须了解护理人员使用基于网络的干预的经验及其相关的基于网络的实施和促进战略。 Objective: This study aims to explore the experiences of carers and perceived acceptability of COPe-support and its different components, how carers found engagement with COPe-support affected their own well-being and caregiving, and the ideas of carers for improving COPe-support and its delivery to inform any future wider implementation. Methods: We conducted a qualitative study, individually interviewing 35 carers, following their use of COPe-support for 8 months through a web-based, randomized controlled trial across England. A semistructured guide with open-ended questions was used to explore the experiences of carers and perceived acceptability of the intervention and their ideas to improve the provision. All interviews were conducted remotely through mobile phones or internet communication media, audio recorded and transcribed verbatim. We used a thematic analysis framework to analyze the data. Results: Three key themes were identified: remote, flexible, and personalized support; impacts on well-being and outlook on caregiving; and future implementation and integration with existing services. Overall, carers found COPe-support a flexible source of knowledge and support from professionals and peers that they could personalize to suit their own needs and convenience. Participants described gaining self-confidence, hope, and a sense of connectivity with others in a similar situation, which helped ameliorate isolation and perceived stigma. Most importantly, COPe-support promoted self-care among the carers themselves. Participants' experiences, use, and activity on COPe-support varied greatly and differed among carers of various ages and levels of computer literacy. Conclusions: Nearly all participants had a positive experience with COPe-support and supported its wider implementation as a beneficial adjunctive support resource for carers in the future. Any future scale-up of such an intervention needs to consider feedback from carers and suggestions for further improvement. These included having more graphics and audiovisual content materials, improving the navigation, and building in more interactional and customization options to suit various user styles, such as emoji reactions, live web-based chat, opting in and out of updates, and choosing the frequency of reminders. To ensure successful implementation, we should also consider factors pertinent to reaching more carers and integrating the web-based resources with other conventional services. Trial Registration: International Standard Randomized Controlled Trial Number (ISRCTN) 89563420; https://www.isrctn.com/ISRCTN89563420 International Registered Report Identifier (IRRID): RR2-10.1186/s12888-020-02528-w ", issn="1438-8871", doi="10.2196/27781", url="//www.mybigtv.com/2022/2/e27781", url="https://doi.org/10.2196/27781", url="http://www.ncbi.nlm.nih.gov/pubmed/35107439" }
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