@文章{信息:doi/10.2196/24638,作者=“Cho, Youmin and Zhang, Huiting and Harris, Marcelline Ruth and Gong, Yang and Smith, Ellen Lavoie and Jiang Yun”,标题=“基于家庭的癌症患者电子症状自我报告系统的接受和使用:系统综述”,期刊=“J Med Internet Res”,年=“2021”,月=“3”,日=“12”,卷=“23”,数=“3”,页=“e24638”,关键词=“症状”;自我报告;远程医疗;技术;互联网;移动电话;病人的偏好;癌症;背景:电子症状自我报告系统(e-SRS)已被证明可以改善癌症患者的症状和生存率。然而,使用e-SRS进行自愿症状自我报告的患者参与度不太理想。 Multiple factors can potentially affect patients' acceptance and engagement in using home-based e-SRS. However, such factors have not been fully explored in cancer populations. Objective: The aim of this study is to understand the acceptance and use of home-based e-SRS by patients with cancer and identify associated facilitators and barriers. Methods: PubMed, CINAHL, Scopus, and PsycINFO (January 2010 to March 2020) were searched using a combination of Medical Subject Headings (MeSH) terms and keywords such as symptom self-reporting, electronic/technology, cancer, and their synonyms. Included studies focused on the use of home-based e-SRS by patients with cancer and their families. Studies on patients' use of e-SRS in clinical settings only were excluded. Of the 3740 papers retrieved, 33 were included in the final review. Factors associated with patient acceptance and use of e-SRS were extracted and synthesized. Results: Most e-SRS were web based (22/33, 66{\%}) or mobile app based (9/33, 27{\%}). The e-SRS initial acceptance, represented by patient enrollment rates, ranged from 40{\%} (22/55) to 100{\%} (100/100). High e-SRS acceptance was rated by 69{\%} (59/85) to 77.6{\%} (337/434) of the patients after they used the system. The e-SRS use, measured by patients' response rates to questionnaires (ranging from 1596/3521, 45.33{\%} to 92{\%}) or system log-on rates (ranging from 4/12, 33{\%} to 99/100, 99{\%}), declined over time in general patterns. Few studies (n=7) reported e-SRS use beyond 6 months, with the response rates ranging from 62{\%} (40/64) to 85.1{\%} (541/636) and the log-on rates ranging from 63.6{\%} (103/162) to 77{\%} (49/64). The availability of compatible devices and technical support, interactive system features, information accessibility, privacy, questionnaire quality, patient physical/psychosocial status, and age were associated with patient acceptance and use of home-based e-SRS. Conclusions: Acceptance and use of home-based e-SRS by patients with cancer varied significantly across studies, as assessed by a variety of approaches. The lack of access to technology has remained a barrier to e-SRS adoption. Interactive system features and personalized questionnaires may increase patient engagement. More studies are needed to further understand patients' long-term use of home-based e-SRS behavior patterns to develop personalized interventions to support symptom self-management and self-reporting of patients with cancer for optimal health outcomes. ", issn="1438-8871", doi="10.2196/24638", url="//www.mybigtv.com/2021/3/e24638", url="https://doi.org/10.2196/24638", url="http://www.ncbi.nlm.nih.gov/pubmed/33709929" }
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