@文章{info:doi/10.2196/27886，作者=“Oerlemans, Simone和艺术，Lindy Paulina Johanna和Kieffer, Jacobien M和Prins, Judith和Hoogendoorn, Mels和van der Poel, Marjolein和Koster, Ad和Lensen, Chantal和Stevens, Wendy Bernadina Catharina和Issa, Djamila和Pruijt, Johannes F M和Oosterveld, Margriet和van der Griend, Ren{\'e}和Nijziel, Marten和Tick, Lidwine和Posthuma, Eduardus F M和van de polll - franse, Lonneke V”，标题=“基于web的单个淋巴瘤患者报告的预后结果:随机对照试验”，期刊=“J Med Internet Res”，年=“2021”，月=“12”，日=“14”，卷=“23”，数=“12”，页=“e27886”，关键词=“淋巴瘤;patient-reported结果;个别结果的返还;随机对照试验;“自我管理”，摘要=“背景:随着患者获取其结果的需求日益增长，患者参与健康的文化已经发生了转变。目的:淋巴瘤干预(LIVE)试验旨在检验个体患者报告结果(PRO)结果的返回和基于网络的自我管理干预对基于人群设置的心理困扰、自我管理、信息满意度和医疗保健使用的影响。方法:PRO结果的返回包括与年龄和性别匹配的同龄人的比较，并被纳入患者报告的初始治疗后的结果和生存率的长期评估登记。自我管理干预是对乳腺癌幸存者的全自动循证干预的改编。完成基于网络的问卷调查的淋巴瘤患者被平均随机分为常规护理、PRO结果返回和PRO结果返回加上自我管理干预。 Patients completed questionnaires 9 to 18 months after diagnosis (T0; n=227), 4 months (T1; n=190), 12 months (T2; n=170), and 24 months (T3; n=98). Results: Of all invited patients, 51.1{\%} (456/892) responded and web-based participants (n=227) were randomly assigned to care as usual (n=76), return of PRO results (n=74), or return of PRO results and access to Living with lymphoma (n=77). Return of PRO results was viewed by 76.7{\%} (115/150) of those with access. No statistically significant differences were observed for psychological distress, self-management, satisfaction with information provision, and health care use between patients who received PRO results and those who did not (P>.05). Use of the self-management intervention was low (2/76, 3{\%}), and an effect could therefore not be determined. Conclusions: Return of individual PRO results seems to meet patients' wishes but had no beneficial effects on patient outcome. No negative effects were found when individual PRO results were disclosed, and the return of individual PRO results can therefore be safely implemented in daily clinical practice. Trial Registration: Netherlands Trial Register NTR5953; https://www.trialregister.nl/trial/5790 International Registered Report Identifier (IRRID): RR2-10.1186/s13063-017-1943-2 ", issn="1438-8871", doi="10.2196/27886", url="//www.mybigtv.com/2021/12/e27886", url="https://doi.org/10.2196/27886", url="http://www.ncbi.nlm.nih.gov/pubmed/34904948" }