@文章{信息:doi/10.2196/19452,作者=“李文毅和邱文毅,曾福春和曾俊春,李俊凯和黄耀伟,叶素华和叶慧珍,程慧珍,鲍文和杨丰荣”,标题=“基于社交媒体的移动健康应用支持慢性肾病患者自我管理:前瞻性随机对照研究”,期刊=“J医学互联网研究”,年=“2020”,月=“12”,日=“15”,卷=“22”,数=“12”,页数=“e19452”,关键词=“慢性肾病;自我管理;自我效能感;生活质量;健康管理平台;背景:慢性肾脏疾病(CKD)是一个全球性的健康负担。自我管理在改善可改变的风险因素方面起着关键作用。目的:本研究旨在评估可穿戴设备、健康管理平台和社交媒体在改善CKD自我管理方面的有效性,旨在建立一种新的自我管理干预模式。方法:在一项为期90天的前瞻性实验研究中,共有60名1-4期CKD患者被纳入干预组(n=30)和对照组(n=30)。所有参与者都配备了收集运动相关数据的可穿戴设备。 All participants maintained dietary diaries using a smartphone app. All dietary and exercise information was then uploaded to a health management platform. Suggestions about diet and exercise were provided to the intervention group only, and a social media group was created to inspire the participants in the intervention group. Participants' self-efficacy and self-management questionnaire scores, Kidney Disease Quality of Life scores, body composition, and laboratory examinations before and after the intervention were compared between the intervention and control groups. Results: A total of 49 participants completed the study (25 in the intervention group and 24 in the control group); 74{\%} of the participants were men and the mean age was 51.22 years. There were no differences in measured baseline characteristics between the groups except for educational background. After the intervention, the intervention group showed significantly higher scores for self-efficacy (mean 171.28, SD 22.92 vs mean 142.21, SD 26.36; P<.001) and self-management (mean 54.16, SD 6.71 vs mean 47.58, SD 6.42; P=.001). Kidney Disease Quality of Life scores were also higher in the intervention group (mean 293.16, SD 34.21 vs mean 276.37, SD 32.21; P=.02). The number of steps per day increased in the intervention group (9768.56 in week 1 and 11,389.12 in week 12). The estimated glomerular filtration rate (eGFR) of the intervention group was higher than that of the control group (mean 72.47, SD 24.28 vs mean 59.69, SD 22.25 mL/min/1.73m2; P=.03) and the decline in eGFR was significantly slower in the intervention group (--0.56 vs --4.58 mL/min/1.73m2). There were no differences in body composition between groups postintervention. Conclusions: The use of wearable devices, a health management platform, and social media support not only strengthened self-efficacy and self-management but also improved quality of life and a slower eGFR decline in people with CKD at stages 1-4. These results outline a new self-management model to promote healthy lifestyle behaviors for patients with CKD. Trial Registration: ClinicalTrials.gov NCT04617431; https://www.clinicaltrials.gov/ct2/show/NCT04617431 ", issn="1438-8871", doi="10.2196/19452", url="//www.mybigtv.com/2020/12/e19452/", url="https://doi.org/10.2196/19452", url="http://www.ncbi.nlm.nih.gov/pubmed/33320101" }
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