@Article{info:doi/10.2196/11682，作者=“Xie, Bo and Champion, Jane Dimmitt and Kwak, Jung and Fleischmann, Kenneth R”，标题=“移动医疗、信息偏好和替代决策偏好:农村西班牙裔社区痴呆症患者家庭照顾者的横断面问卷研究”，期刊=“J Med Internet Res”，年=“2018”，月=“Dec”，日=“10”，卷=“20”，数=“12”，页=“e11682”，关键词=“mHealth”;老年痴呆症;护理人员;背景:移动医疗(mHealth)技术有望在服务不足的人群中促进健康教育和减少健康差异和不平等。然而，很少有研究为痴呆症患者的家庭照顾者开发移动健康干预措施，特别是那些在农村西班牙裔社区的人，他们经常作为痴呆症亲属的代理决策者。摘要目的:作为一个更大的项目的一部分，开发和测试一种新颖的、负担得起的、易于使用的移动健康干预措施，在农村西班牙裔社区提供量身定制的材料，在这个试点研究中，我们旨在检查(1)农村西班牙裔社区痴呆症患者及其家庭照顾者的特征，(2)照顾者对健康信息类型和数量的偏好以及对替代决策的参与。(3)护理人员的移动设备使用情况及通过移动设备接收信息的意愿。方法:采用横断面调查。在2017年4月至5月的3周内，通过口口相传和在设施张贴传单的方式，从德克萨斯州西南部的农村卫生保健机构招募了50名痴呆症患者护理人员作为方便样本。 Results: More women than men were in the patient group ($\chi$21=17.2, P<.001) and in the caregiver group ($\chi$21=22.2, P<.001). More patients were on Medicare and Medicaid; more caregivers had private insurance (P<.001 in all cases). Overall, 42{\%} of patients did not have a power of attorney for their health care; 40{\%} did not have a living will or advance directive. Caregivers were interested in receiving all types of information and participating in all types of decisions, although on subscales for diagnosis, treatment, laboratory tests, self-care, and complementary and alternative medicine, their levels of interest for decision-making participation were significantly lower than those for receiving information. On the psychosocial subscale, caregivers' desire was greater for surrogate decision-making participation than for information. Caregivers did not differ in their interests in information and participation in decision making on the health care provider subscale. All but 1 caregiver (98{\%}) owned a mobile phone and 84{\%} had a smartphone. Two-thirds wanted to receive at least a little dementia-related information via a smartphone or tablet. The amount of dementia-related information caregivers wanted to receive via a mobile device was significantly greater for women than for men (U=84.50, P=.029). Caregivers who owned a tablet were more likely to want to receive dementia-related information via a mobile device than those who did not own a tablet (U=152.0, P=.006). Conclusions: Caregivers in rural Hispanic communities were interested in receiving a wide range of information as well as participating in making decisions for their relatives with dementia. There is much need for effective mHealth interventions that can provide information tailored to the needs and preferences of these caregivers. ", issn="1438-8871", doi="10.2196/11682", url="//www.mybigtv.com/2018/12/e11682/", url="https://doi.org/10.2196/11682", url="http://www.ncbi.nlm.nih.gov/pubmed/30530450" }