@Article{信息:doi 10.2196 / / jmir。7079，作者="Oerlemans, Simone和Arts, Lindy P和Horevoorts, Nicole J和van de polll - franse, Lonneke V"， title=" ' '我正常吗?“淋巴瘤患者的意愿与同类患者报告结果的比较”，期刊=“J Med Internet Res”，年=“2017”，月=“Aug”，日=“15”，卷=“19”，数=“8”，页=“e288”，关键词=“淋巴瘤;与健康有关的生活质量;个性化的反馈;自理;获取信息;背景:向患者提供关于患者报告结果(PROs)的反馈可以帮助患者监测他们的功能和症状，并可能有助于增强他们的能力。目的:本研究的目的是调查淋巴瘤患者是否希望获得PRO反馈，包括与同龄人比较评分的选项，以及如何评估这种反馈。方法:我们邀请了64名参与淋巴瘤队列的患者，他们有资格进行随访问卷调查，并让他们选择接受PRO反馈。 Patients completed questions about health-related quality of life (HRQoL) and symptoms. PRO feedback was provided via bar charts. Results: Of the 64 invited patients, 45 participated (response rate 70{\%}) and 36 of those (80{\%}) wished to receive PRO feedback. The vast majority (34/36, 94{\%}) compared their scores with those of a lymphoma reference cohort, and 64{\%} (23/36) compared their score with those of a normative population without cancer. All patients wished to receive feedback on their HRQoL, and 29 (81{\%}) to 33 (92{\%}) wanted feedback on their functioning, fatigue, neuropathy, anxiety, and depressive symptoms. Of the 36 participants wishing to receive PRO feedback, 35 (97{\%}) viewed it as being useful, with reassurance and knowledge about their own functioning in relation to what is ``normal'' being the most frequently mentioned reasons. Conclusions: A high number of patients with lymphoma wished to receive PRO feedback. Patients reported the comparison of their scores versus a lymphoma reference cohort as most valuable. Further research should investigate whether PRO feedback could increase empowerment and possibly improve HRQoL. ", issn="1438-8871", doi="10.2196/jmir.7079", url="//www.mybigtv.com/2017/8/e288/", url="https://doi.org/10.2196/jmir.7079", url="http://www.ncbi.nlm.nih.gov/pubmed/28811271" }