@Article{信息:doi 10.2196 / / jmir。4914，作者=“Nicolaije, Kim AH和Ezendam, Nicole PM和Pijnenborg, Johanna MA和Boll, Dorry和Vos, Maria Caroline和Kruitwagen, Roy FPM和van de pollo - franse, Lonneke V”，标题=“基于纸张的生存护理计划可能对在互联网上搜索疾病相关信息的癌症患者没有多大帮助:“注册系统肿瘤妇科(ROGY)护理随机试验结果”，期刊=“J Med Internet Res”，年=“2016”，月=“7月”，日=“08”，卷=“18”，数=“7”，页=“e162”，关键词=“生存率护理计划;互联网的使用;实用聚类随机试验;子宫内膜肿瘤;patient-reported结果;背景:医学研究所建议为所有癌症幸存者提供幸存者护理计划(SCPs)。然而，目前尚不清楚某些患者群体是否可能受益于scp。目的:目的是评估自动生成的纸质SCP对患者对信息提供和护理的满意度、疾病感知和医疗保健利用的影响是否受到疾病相关互联网使用的调节。 Methods: Twelve hospitals were randomized to either SCP care or usual care in the pragmatic cluster randomized Registrationsystem Oncological GYnecology (ROGY) Care trial. Newly diagnosed endometrial cancer patients completed questionnaires after diagnosis (N=221; response: 74.7{\%}, 221/296), 6 months (n=158), and 12 months (n=147), including patients' satisfaction with information provision and care, illness perceptions, health care utilization (how many times patients visited a medical specialist or primary care physician about their cancer in the past 6 months), and disease-related Internet use (whether patients used the Internet to look for information about cancer). Results: In total, 80 of 221 (36.2{\%}) patients used the Internet to obtain disease-related information. Disease-related Internet use moderated the SCP care effect on the amount of information received about the disease (P=.03) and medical tests (P=.01), helpfulness of the information (P=.01), and how well patients understood their illness (P=.04). All stratified analyses were not statistically significant. However, it appeared that patients who did not seek disease-related information on the Internet in the SCP care arm reported receiving more information about their disease (mean 63.9, SD 20.1 vs mean 58.3, SD 23.7) and medical tests (mean 70.6, SD 23.5 vs mean 64.7, SD 24.9), finding the information more helpful (76.7, SD 22.9 vs mean 67.8, SD 27.2; scale 0-100), and understanding their illness better (mean 6.6, SD 3.0 vs mean 6.1, SD 3.2; scale 1-10) than patients in the usual care arm did. In addition, although all stratified analyses were not significant, patients who did seek disease-related information on the Internet in the SCP care arm appeared to receive less information about their disease (mean 65.7, SD 23.4 vs mean 67.1, SD 20.7) and medical tests (mean 72.4, SD 23.5 vs mean 75.3, SD 21.6), did not find the information more helpful (mean 78.6, SD 21.2 vs mean 76.0, SD 22.0), and reported less understanding of their illness (mean 6.3, SD 2.8 vs mean 7.1, SD 2.7) than patients in the usual care arm did. Conclusions: Paper SCPs appear to improve the amount of information received about the disease and medical tests, the helpfulness of the information, and understanding of the illness for patients who do not search for disease-related information on the Internet. In contrast, paper SCPs do not seem beneficial for patients who do seek disease-related information on the Internet. Trial Registration: ClinicalTrials.gov NCT01185626; https://clinicaltrials.gov/ct2/show/NCT01185626 (Archived by WebCite at http://www.webcitation.org/6fpaMXsDn) ", issn="1438-8871", doi="10.2196/jmir.4914", url="//www.mybigtv.com/2016/7/e162/", url="https://doi.org/10.2196/jmir.4914", url="http://www.ncbi.nlm.nih.gov/pubmed/27392550" }