@Article{信息:doi 10.2196 / / jmir。5374,作者=“Bright, Philip和Hambly, Karen和Tamakloe, Sandra”,title=“加入KNEEguru在线健康社区的个人概况是什么?”《跨断面混合方法研究》,期刊=《医学互联网研究》,年=“2016”,月=“4”,日=“18”,卷=“18”,数=“4”,页数=“e84”,关键词=“信息检索行为;互联网;非语言沟通;背景:互联网为寻求健康相关信息的人提供了便利,并为许多医疗条件提供了各种来源(质量不一)。有一种建议是,患者可以通过参与互联网医疗保健战略和社区来获得权力。关于膝盖疼痛的在线健康信息的消费者的概况还没有被探索。目的:我们的目的是确定访问在线健康社区KNEEguru (KG)的在线健康信息寻求者的特征和动机。该研究旨在获得受访者的社会人口统计资料,以及他们加入这样一个社区的主要原因和动机,他们的健康信息寻求行为,他们的膝盖问题的程度,以及他们的一般互联网使用情况。 Methods: We undertook an online questionnaire survey, offered to users of the KG website from June to July 2012. A mix of open and closed questions was used to facilitate inductive enquiry. Quantitative responses were analyzed using univariate analysis; qualitative thematic analysis of the open responses was completed and a conceptual model was developed. Results: One-hundred and fifty-two respondents took part (11.56{\%} response rate, 152/1315), with a mean age of 40.1 years. Of this cohort, 61.2{\%} were female, 68.4{\%} were in domestic partnerships, 57.2{\%} were employed, 75.0{\%} had higher education qualifications, and 80.3{\%} were of white/Caucasian ethnicity. Females were associated with joining KG in order to get emotional support from other users (OR 2.11, 95{\%} CI 1.04 - 4.27, P=.04). Respondents' self-perception of health was associated with reported quality of life (OR 10.86, 95{\%} CI 3.85 - 30.43, P<.001). Facebook users were associated with joining KG to share experiences (OR 2.34, 95{\%} CI 1.04 - 5.56, P=.03). Post-surgery respondents were associated with joining KG to compare symptoms with other users (OR 7.31, 95{\%} CI 2.06 - 39.82, P<.001). Three key themes were induced: condition, emotion and support. Respondents expressed distress and frustration at uncertainty of prognosis around various knee conditions, with some users preferring to initially observe rather than engage. Conversely, a strong desire to inform and support other community members was stated with reciprocation of ideas and experiences. KG was conceptualized as a filter that takes an individual's condition and emotional response to that condition as basis for support; this filter facilitated validation as the outcome of engagement. Conclusions: This study, in line with wider literature, suggests that users of an online knee-specific community are typically female, middle-aged, white/Caucasian, married, employed, and have attained a level of higher education. These users demonstrate a pragmatic approach to health care information with altruistic motivations and a desire to share experiences as a means of validation. This finding emphasizes a means of promoting efficient and appropriate online health care, and demonstrates the benefits of the Internet as a viable complement to clinical engagement. ", issn="1438-8871", doi="10.2196/jmir.5374", url="//www.mybigtv.com/2016/4/e84/", url="https://doi.org/10.2196/jmir.5374", url="http://www.ncbi.nlm.nih.gov/pubmed/27089531" }
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