@Article{信息:doi 10.2196 / / jmir。4124,作者=“Park, Eunhee and Kim, Heejung and Steinhoff, Andreanna”,标题=“儿童和青少年非正式照顾者与健康相关的互联网使用:综合文献综述”,期刊=“J医学互联网研究”,年=“2016”,月=“3”,日=“03”,卷=“18”,数=“3”,页=“e57”,关键词=“互联网;护理人员;孩子;青少年;电子健康;背景:基于互联网的卫生资源可以为照顾有卫生保健需求的儿童或青少年的非正式护理人员提供支持。然而,很少有研究将非正式照护者的需求与照护对象的需求或照护成人的需求区别开来。目的:本研究回顾了儿童和青少年非正式照顾者中与健康相关的互联网使用的文献。方法:从PubMed、Cochrane、CINAHL、PsycINFO、ERIC、EMBASE 6个电子数据库的文献检索中筛选出17篇研究。 All databases searches were limited to articles published in the years 2004 to 2014 in peer-reviewed publications. Search terms consisted of ``health-related Internet use,'' ``eHealth,'' ``Internet use for health-related purpose(s),'' ``Web-based resource(s),'' and ``online resources,'' combined with informal caregiver (or ``parents'') of ``child,'' ``adolescent,'' ``student,'' ``youth,'' and ``teen.'' The age range of the children receiving care was limited to younger than 22 years. Their informal caregivers were defined as persons (parents) who provided unpaid care or assistance to a child or an adolescent with health problems. Results: Among 17 empirical studies, the majority of informal caregivers of children with medical issues were the parents. Quantitative studies (14/17, 77{\%}) reported prevalence and predictors of health-related Internet use, while mixed-methods and qualitative studies (3/17, 24{\%}) investigated informal caregiver perceptions of helpful health-related Internet use and barriers of use. The prevalence of health-related Internet use varied (11{\%}-90{\%}) dependent upon how health-related Internet use was operationalized and measured. Disease-specific information was used for decision making about treatment, while social support via virtual communities and email were used for informal caregiver emotional needs. A digital divide of Internet access was identified in lower educated minorities. Most studies had methodological challenges resulting from convenience sampling, cross-sectional surveys, lack of theoretical frameworks, or no clear definitions of health-related Internet use. Conclusions: This study provides an important understanding of how family members use Internet-based information and support systems during child caregiving. Healthcare providers and policy makers should integrate family needs into their current practices and policies. Further rigorous research is required to design efficient and effective nursing interventions. ", issn="1438-8871", doi="10.2196/jmir.4124", url="//www.mybigtv.com/2016/3/e57/", url="https://doi.org/10.2196/jmir.4124", url="http://www.ncbi.nlm.nih.gov/pubmed/26940750" }
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